Evidence map›Paper›PMID 41257372›Full record

SynthesisJournal of applied research in intellectual disabilities : JARID2025

Involving Carers in Therapy for Adults With Intellectual Disabilities: A Systematic Review of Client, Carer and Therapist Perspectives.

Charlotte Farnsworth, Thomas Schröder

Abstract readSystematic Review
In one paragraph

Synthesis in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Charlotte FarnsworthTrent Doctorate in Clinical Psychology, Mental Health and Clinical Neurosciences, School of Medicine, University of Nottingham, Nottingham, UK.ORCID https://orcid.org/0009-0001-1129-7749
Thomas SchröderTrent Doctorate in Clinical Psychology, Mental Health and Clinical Neurosciences, School of Medicine, University of Nottingham, Nottingham, UK.ORCID https://orcid.org/0000-0002-6466-4960

Funding

Health Education England
6 · The paper itself

Abstract

backgroundAdaptations are frequently reported when delivering therapy to people with an intellectual disability, including the involvement of carers. This review aimed to understand the experience of carer involvement from the perspective of the person, therapist and caregiver.

methodsA systematic search of six databases and of reference lists was conducted. The quality of the included studies was assessed using an adapted version of the Critical Appraisal Skills Programme qualitative checklist. Data was synthesised using meta-ethnography.

resultsSixteen studies were included but their quality varied. Five third-order constructs were identified: safety, therapeutic process, relationships, personal impact on carer and improving the experience.

conclusionFindings suggest that carer involvement can be a positive experience and aid the therapy process. However, this depended on several factors including carer motivation and consistency. Confidentiality issues were highlighted. Limitations of studies included poor reporting on participant demographics and small samples. Future research and clinical implications are suggested.

Indexed as

CaregiversIntellectual DisabilityAdultHumanscarer involvementintellectual disabilitymeta‐ethnographypsychological therapy

Identifiers

PMID41257372
PMCPMC12628289

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.