Evidence map›Paper›PMID 41251970›Full record

ArticleFamilial cancer2025

Patient and provider perspectives on how a mobile health application may address barriers to Lynch Syndrome care.

Minh Do, Ashley Dafoe, Elizabeth K Magnan, Jordan Clawson, Sheana Bull, Elizabeth P Ryan, Michelle Springer, Talia Thompson, Swati G Patel

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Article in Familial cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Minh DoDivision of General Internal Medicine, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
Ashley DafoeAdult and Child Center for Outcomes Research and Delivery Science (ACCORDS), Aurora, Colorado, USA.
Elizabeth K MagnanDivision of Gastroenterology and Hepatology, University of Colorado Anschutz Medical Campus, 1635 Aurora Court, Aurora, Colorado, 80045, USA.
Jordan ClawsonDivision of General Internal Medicine, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
Sheana BullSchool of Public Health, Department of Community and Behavioral Health, University of Colorado, Aurora, Colorado, USA.
Elizabeth P RyanColorado State University, Fort Collins, Colorado, USA.
Michelle SpringerUniversity of Colorado Cancer Center, Aurora, Colorado, USA.
Talia ThompsonAdult and Child Center for Outcomes Research and Delivery Science (ACCORDS), Aurora, Colorado, USA.
Swati G PatelDivision of Gastroenterology and Hepatology, University of Colorado Anschutz Medical Campus, 1635 Aurora Court, Aurora, Colorado, 80045, USA. Swati.Patel@cuanschutz.edu.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLynch Syndrome (LS) is a common condition that increases risk of multi-organ cancers. Risk-reduction care is complex and challenging, resulting in suboptimal adherence care despite patient motivation. There is a need for an accessible, centralized, evidence-based platform that provides up-to-date medical information to patients and clinicians to navigate their complex care. The aim of this study was to understand how a mobile health application (mHealth app) could meet these needs.

methodsSemi-structured interviews were conducted with a purposefully recruited stratified sample of adult patients with LS and clinicians across different specialties. Qualitative content analysis was used to explore experiences with LS care and perspectives on potential mHealth solutions, with triangulation of participant data to inform key components of mHealth app design.

findingsThree core themes were identified, capturing the challenges LS patients face in managing their care and how an mHealth app can potentially overcome these challenges: (1) the importance of accurate and up-to-date information about LS, (2) the need for streamlined and centralized care management, and (3) the value of building connections to overcome isolation. Our study also identified key features of an mHealth app to address these challenges while optimizing usability and accessibility per patient/provider preference.

interpretationLS patients and clinicians experience multifaceted barriers to LS management that an mHealth app can help overcome. This application can support LS patients and providers by empowering patients with vetted, up-to-date information, serving as a centralized location to store and organize their medical care, and providing opportunities to build connections.

Indexed as

Colorectal Neoplasms, Hereditary NonpolyposisMobile ApplicationsAdultAgedAttitude of Health PersonnelDigital HealthFemaleHumansMaleMiddle AgedQualitative ResearchTelemedicineApplicationLynch syndromeMobile healthThematic analysis

Identifiers

PMID41251970

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.