ReviewHaemophilia : the official journal of the World Federation of Hemophilia
A Comprehensive Approach: Addressing Psychological Needs in Gene Therapy for Haemophilia.
Review in Haemophilia : the official journal of the World Federation of Hemophilia. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Gene Therapy in Hemophilia: Clinical Advances, Immunological Challenges, and Emerging Therapeutic Perspectives.International journal of molecular sciences · 2026Review
- A Comprehensive Approach: Addressing Psychological Needs in Gene Therapy for Haemophilia.Haemophilia : the official journal of the World Federation of HemophiliaReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionGene therapy (GT) represents a transformative development in the treatment of haemophilia, offering the potential for long-lasting symptom control after a single administration. Although the scientific and medical aspects of this innovation have been widely studied, its psychological impact remains under-addressed.
aimsThis paper explores the importance of providing continuous psychological support to individuals with haemophilia who are undergoing GT, emphasizing its necessity before, during, and after treatment.
resultsPersons living with haemophilia often experience a wide range of emotions, including hope, fear, anxiety, and uncertainty, particularly as they transition from managing a chronic condition to facing the possibility of long-lasting therapeutic benefit and enduring freedom from regular treatment. Psychological support plays a pivotal role in preparing them to understand and cope with the profound shifts that GT entails. In the pre-therapy stage, mental health professionals can help assess readiness, align expectations, and mitigate anxiety. During treatment, those with haemophilia may confront emotional stress related to the novelty, irreversibility, and physical effects of the procedure, including adverse reactions and the psychological consequences of steroid use. In the post-treatment phase, emotional responses to treatment outcomes require careful management. Moreover, those who are ineligible for GT may experience emotional distress that also warrants psychological support. DISCUSSIONS: By recognizing these varied psychological dimensions, healthcare providers can implement comprehensive support strategies that enhance treatment adherence, emotional resilience, and quality of life.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.