ArticleBMJ paediatrics open2025
Building parent/caregiver confidence and re-engaging in parent occupations: WeCare programme for parents/caregivers post developmental disability diagnosis.
Article in BMJ paediatrics open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundParents of children newly diagnosed with a developmental disability may experience stress, with no time for their personal care and well-being. WeCare is an online group programme, co-designed to support parents/caregivers around the time of diagnosis. It focuses on increasing parent/caregiver knowledge and confidence, highlighting family quality of life and steering parents to re-engage in meaningful parent occupations. This study aimed to evaluate WeCare programme outcomes around improved understanding of diagnosis, of parent occupations (time-use), well-being and participant rating of professional and peer-facilitated support.
methodsA multiple single-case AB design with pre-post measurement at limited time points was used. Parents of children with a recent developmental disability diagnosis participated in WeCare. Perceived well-being data were collected using validated measures, a demographic questionnaire and a rating scale at the start of the programme. Data were analysed using SPSS for descriptive analyses, post survey questionnaire results and paired sample t-tests.
resultsAmong participants (n=47, missing data), 30 of 41 reported mild to extremely severe stress, 25 of 42 reported mild to extremely severe depression, and 18 of 36 reported moderate to extremely severe anxiety. Poor sleep quality was reported by 21 of 45 participants. Caregiving dominated time use, with limited engagement in leisure occupations.Post-programme feedback highlighted increased understanding of the diagnosis, valued peer support and helpful resources.
conclusionThis study provides preliminary evidence, highlighting the critical role of capacity-building and structured programmes, like WeCare, in empowering parents and caregivers around the time of diagnosis. The programme was highly rated by participants, with peer facilitators seen as particularly valuable. Parents reported increased understanding of their child's diagnosis, greater awareness of resources and strong engagement with the parent occupation categories, showing promise in enhancing caregiver outcomes around the time of diagnosis that may be feasible for wider implementation.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.