Evidence map›Paper›PMID 41247569›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2025

Design and implementation of data quality controls in the EQ-DAPHNIE study: insights from the pilot phase and 15-country analysis.

Fatima Al Sayah, Hilary Short, Juan M Ramos-Goñi, Rosalie Viney, Erica I Lubetkin, Mathieu F Janssen, Jeffrey A Johnson, EQ-DAPHNIE Project Team

Abstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Comparative performance of the EQ-5D-5L, EQ-HWB, and PROMIS-10 in screening for history of anxiety and depression in the general adult population in 15 countries.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  2. Comparative performance of EQ-5D-5L bolt-ons in China and the Netherlands: results from the EQ-DAPHNIE project.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  3. Measuring inequality in quality of life: further evidence that the EQ-5D-5L may underestimate it.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  4. EQ-5D-5L Iranian population norms derived from the local value set during the COVID-19 pandemic.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Fatima Al SayahAlberta PROMs and EQ-5D Research and Support Unit (APERSU), School of Public Health, University of Alberta, Edmonton, AB, Canada. falsayah@ualberta.ca.
Hilary ShortAlberta PROMs and EQ-5D Research and Support Unit (APERSU), School of Public Health, University of Alberta, Edmonton, AB, Canada.
Juan M Ramos-GoñiDecision Analysis and Support Unit, SGH, Warsaw School of Economics, Warsaw, Poland.
Rosalie VineyUniversity of Technology Sydney, Ultimo, Australia.
Erica I LubetkinCUNY School of Medicine, New York, USA.
Mathieu F JanssenEuroQol Research Foundation, PO BOX 4443, 3006 AK, Rotterdam, The Netherlands.
Jeffrey A JohnsonAlberta PROMs and EQ-5D Research and Support Unit (APERSU), School of Public Health, University of Alberta, Edmonton, AB, Canada.
EQ-DAPHNIE Project Team

Funding

Research Center in Minority Institutions (RCMI) at City CollegeU54MD017979 · NIMHD · CITY COLLEGE OF NEW YORK · PI M. Felice Marina GHILARDI · 2024 to 2026
$15.9M
EuroQol Research Foundation 367-RANIMHD NIH HHS U54 MD017979
6 · The paper itself

Abstract

objectiveThe EQ-DAPHNIE (EuroQol Data for Assessment of Population Health Needs and Instrument Evaluation) project is a large, multi-country survey initiative designed to generate population norms and enable comparative research using self-reported health measures. This paper describes the quality control processes and summarizes data quality metrics from the United Kingdom (UK) pilot and full implementation across 15 countries.

methodsRepresentative samples were recruited via Dynata, an online survey panel provider, using quota sampling by age, sex, income, community setting, and language (where applicable). The UK pilot (n = 3012) informed survey refinements ahead of full rollout (n = 68,411). Quality metrics included completion rates, bot detection, speeding, missing data, outliers, and quota achievement.

resultsAcross countries, response rates ranged from 80.1 to 100%, with completion rates varying widely (22.9% in Brazil to 60.8% in Japan; average 42.4%). Bot exclusions averaged 3.0%, peaking in China (11.7%). Speeding was low (0.3% average), and duplicate records were rare. Completion times ranged from 18.3 (France) to 31.4 min (New Zealand). Missing data varied substantially (0.0-48.7%), with Japan and Spain showing the least. Quota fulfillment ranged from 68.7 to 98.6%. Consistency checks showed strong agreement for repeated items-marital status (92.8-98.9%) and age (92.3-98.7%).

conclusionsThe quality control measures implemented throughout the EQ-DAPHNIE project effectively addressed common issues such as bot responses, speeding, and missing data, resulting in generally high-quality and representative datasets. However, variability across countries underscores the need to account for quality indicators when using the data for norm-setting or cross-country comparisons.

Indexed as

Data AccuracyQuality ControlQuality of LifeAdolescentAdultAgedFemaleHumansMaleMiddle AgedPilot ProjectsSurveys and QuestionnairesUnited KingdomYoung AdultData qualityOnline surveysPanel researchPatient-reported outcome measuresQuota sampling

Identifiers

PMID41247569
PMCPMC12689740

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.