Evidence map›Paper›PMID 41246290›Full record

ArticlePalliative care and social practice2025

Experiences of care partners and residents with the Long-Term Care Palliative Toolkit during the COVID-19 pandemic: A multiple methods study.

Marie-Lee Yous, Rose McCloskey, Abigail Wickson-Griffiths, Donny Li, Vanessa Maradiaga Rivas, Amit Arya, Sheila A Boamah, Maureen Dobbins, Pamela Durepos, Paulette V Hunter and 5 more

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Article in Palliative care and social practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Marie-Lee YousSchool of Nursing, McMaster University Faculty of Health Sciences, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0002-4271-0401
Rose McCloskeyDepartment of Nursing and Health Sciences, University of New Brunswick Saint John, NB, Canada.
Abigail Wickson-GriffithsFaculty of Nursing, University of Regina, SK, Canada.
Donny LiMichael G. DeGroote School of Medicine, McMaster University Faculty of Health Sciences, Hamilton, ON, Canada.
Vanessa Maradiaga RivasSchool of Nursing, McMaster University Faculty of Health Sciences, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0003-4744-8630
Amit AryaMcMaster University, Hamilton, ON, Canada.
Sheila A BoamahSchool of Nursing, McMaster University Faculty of Health Sciences, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0001-6459-4416
Maureen DobbinsSchool of Nursing, McMaster University Faculty of Health Sciences, Hamilton, ON, Canada.
Pamela DureposFaculty of Nursing, University of New Brunswick, Hanwell, NB, Canada.
Paulette V HunterDepartment of Psychology, St. Thomas More College, Saskatoon, SK, Canada.
Sarah Neil-SztramkoDepartment of Health Research Methods Evidence and Impact, McMaster University, Hamilton, ON, Canada.
Henry SiuDepartment of Medicine, McMaster University, Hamilton, ON, Canada.
Tamara SussmanSchool of Social Work, McGill University, Montreal, QC, Canada.ORCID https://orcid.org/0000-0002-1226-6450
Genevieve ThompsonUniversity of Manitoba, Winnipeg, MB, Canada.
Sharon KaasalainenMcMaster University, Hamilton, ON, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: With a large burden of suffering and death in 2020 due to COVID-19 in long-term care (LTC) homes resulting in restrictions of visitations, there is a need for a formal virtual intervention to support families/friends (i.e., care partners) and residents around palliative care, including planning for end-of-life when outbreaks like these occur. The LTC Palliative Toolkit includes informational resources for care partners, residents, and healthcare providers about the trajectory of life-limiting chronic illnesses (i.e., frailty, dementia, heart failure, kidney disease, lung disease) and Palliative Care Conferences (PCCs). Objective: To evaluate the impact of the LTC Palliative Toolkit on preparedness for end-of-life and satisfaction with information and to explore the experiences of care partners and residents with the virtual delivery of the components of the LTC Palliative Toolkit (i.e., informational pamphlets and PCCs). Methods: A multiple methods design was employed. Three LTC homes, one from each province (Ontario, New Brunswick, and Saskatchewan, Canada), were selected to reflect diverse contexts (e.g., ownership, staff turnover, facility size, and location). Caring Ahead surveys focusing on actions, dementia knowledge, communication, and emotions and support needs were conducted with care partners before and after PCCs to evaluate how prepared they felt about their relative or friend's end-of-life and their satisfaction. Some care partners and residents completed telephone semi-structured interviews to explore their experiences with care received. Results: Survey findings revealed only one statistically significant improvement after the intervention period, an improvement in the emotion and support needs domain following PCCs, with baseline and follow-up mean scores of 6.08 (SD = 1.06) and 6.35 (SD = 1.16), respectively ( Conclusion: The LTC Palliative Toolkit is suitable for use in any context and demonstrated high acceptability during the COVID-19 pandemic.

Indexed as

care partnersconferenceseducationend-of-lifehealthcare providerslong-term careolder adultspalliative approachpalliative carevirtual care

Identifiers

PMID41246290
PMCPMC12612540

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.