Evidence map›Paper›PMID 41245069›Full record

ArticleJournal of developmental and physical disabilities2025

Exploring Parent and Autistic Youth Perspectives to Inform Adaptations for an Advocacy Program.

Meghan M Burke, Amanda N Johnston, Saury Ramos-Torres, Sanskriti Singh, Leann Smith DaWalt, Julie Lounds Taylor

Abstract read
In one paragraph

Article in Journal of developmental and physical disabilities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Meghan M BurkeDepartment of Special Education, Vanderbilt University, Nashville, TN USA.ORCID 0000-0001-5287-2351
Amanda N JohnstonDepartment of Special Education, Vanderbilt University, Nashville, TN USA.
Saury Ramos-TorresDepartment of Special Education, Vanderbilt University, Nashville, TN USA.
Sanskriti SinghDepartment of Special Education, Vanderbilt University, Nashville, TN USA.
Leann Smith DaWaltWaisman Center, University of Wisconsin at Madison, Madison, WI USA.
Julie Lounds TaylorDepartment of Pediatrics, Vanderbilt University Medical Center, Nashville, TN USA.

Funding

Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at VanderbiltP50HD103537 · NICHD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI Jeffrey L Neul · 2020 to 2026
$10.3M
NICHD NIH HHS P50 HD103537
6 · The paper itself

Abstract

Autistic Youth and their parents often struggle to access adult disability services. It is important to garner feedback from autistic youth and their parents to inform interventions to facilitate access to adult services. In this study, 128 parents of transition-aged autistic youth and 78 autistic youth completed individual interviews to inform adaptations to an advocacy program designed to improve access to adult services. Parents reported wanting a navigator (versus a group) program to help them learn to navigate adult services. However, parents reported concerns about the quality of navigators. Autistic youth reported wanting to learn about diverse issues in adulthood including types of adult services; most youth wanted to learn about services via videos. Implications for research and practice are discussed.

Indexed as

AdvocacyAutismNavigationServices

Identifiers

PMID41245069
PMCPMC12615511

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.