Evidence map›Paper›PMID 41239167›Full record

ArticleJournal of patient-reported outcomes2025

German translation of the Characterizing Freezing of gait questionnaire: implementation of the TRAPD process.

Agnes Wilhelm, Jessie Janssen, Malena Teufelhart, Kaylena Ehgoetz Martens, Alice Nieuwboer, Peter Augat

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Article in Journal of patient-reported outcomes, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

6 authors.

Agnes WilhelmInstitute Therapeutic and Midwifery Sciences, IMC Krems University of Applied Sciences, Krems an Der Donau, Austria. agnes.wilhelm@imc.ac.at.ORCID http://orcid.org/0000-0003-0582-866X
Jessie JanssenInstitute Therapeutic and Midwifery Sciences, IMC Krems University of Applied Sciences, Krems an Der Donau, Austria.
Malena TeufelhartInstitute Therapeutic and Midwifery Sciences, IMC Krems University of Applied Sciences, Krems an Der Donau, Austria.
Kaylena Ehgoetz MartensDepartment of Kinesiology and Health Sciences, University of Waterloo, Waterloo, Canada.
Alice NieuwboerDepartment of Rehabilitation Science, KU Leuven, Leuven, Belgium.
Peter AugatInstitute for Biomechanics BG Unfallklinik Murnau, Murnau Am Staffelsee, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundFreezing of Gait (FOG) is a severe symptom of Parkinson’s Disease (PD) that affects mobility and quality of life. The ‘Characterizing Freezing of Gait Questionnaire’ (C-FOG) is an assessment tool for screening and determining subtypes of FOG. However, it currently only exists in the English language. This study aimed to translate the C-FOG from English to German METHODOLOGY: This project was conducted from September 2024 to February 2025 at a University of Applied Sciences in Krems, Austria and applied the Translation, Review, Adjudication, Pretest, and Documentation (TRAPD) process. This included professional translations, 1 review-workshop with 4 participants, adjudication, pre-testing in 2 workshops with 11 participants, including 8 healthcare workers and 3 people with Parkinson’s disease, and parallel detailed documentation of all changes and decisions.

resultsIn the first translation stage of the C-FOG two professional translators provided two different preliminary German translations. The original questionnaire was divided into 62 translation units to provide a detailed descriptive analysis of the adaptations made in each step of the translation process. During the review stage, 31 units (50%) of the preliminary translations required adaptation. During the pre-test stage, the participants discussed the German translation of the C-FOG that had been adjudicated in the previous stage. This resulted in the need for further adaptations of 25 translation units (40%), while 37 units (60%) required no additional changes. Following back-translation by a professional translator and feedback from the first author of the original questionnaire, the German version of the C-FOG, the C-FOG-D, was finalized.

conclusionThis study provides a systematically conducted German translation of the Characterizing Freezing of Gait Questionnaire using the TRAPD process to ensure understandability and equivalence to the original questionnaire. A full consensus was reached among the participants involved in the final translation stage. For future validation studies and potential modifications to the questionnaire, it is necessary to include more people with PD experiencing FOG. A larger sample size could offer a more comprehensive perspective on how individuals differ in their perceptions of FOG, and to what extent the language used in the questionnaire effectively captures these experiences.

Indexed as

Gait Disorders, NeurologicParkinson DiseaseAgedAustriaFemaleGermanyHumansMaleQuality of LifeSurveys and QuestionnairesTranslatingTranslationsFreezing of gaitParkinson’s DiseasePatient-reported outcome measurementScreeningSubtypesTranslation

Identifiers

PMID41239167
PMCPMC12618777

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.