Evidence map›Paper›PMID 41236197›Full record

SynthesisNursing open2025

Caring for the Informal Caregivers: Systematic Review of Unmet Needs in Palliative Care.

Matteo Usai, Marco Sguanci, Anna De Benedictis, Michela Piredda, Maria Grazia De Marinis

Abstract readSystematic Review
In one paragraph

Synthesis in Nursing open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Matteo UsaiDepartment of Biomedicine and Prevention, Tor Vergata University, Rome, Italy.
Marco SguanciResearch Unit Nursing Science, Department of Medicine and Surgery, Campus Bio-Medico di Roma University, Rome, Italy.
Anna De BenedictisResearch Unit Nursing Science, Department of Medicine and Surgery, Campus Bio-Medico di Roma University, Rome, Italy.
Michela PireddaResearch Unit Nursing Science, Department of Medicine and Surgery, Campus Bio-Medico di Roma University, Rome, Italy.ORCID https://orcid.org/0000-0001-5998-476X
Maria Grazia De MarinisResearch Unit Nursing Science, Department of Medicine and Surgery, Campus Bio-Medico di Roma University, Rome, Italy.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimThis review aims to describe the literature on the unmet needs of family/informal caregivers of patients in palliative care and the tools used to assess them. RESEARCH QUESTIONS: What are the unmet needs of informal caregivers of palliative care patients? Which are the tools used to assess them?

designSystematic review reported according to the PRISMA guidelines.

methodsA comprehensive literature search was performed in Cochrane Library, PubMed, Embase, CINAHL, Scopus and Web of Science databases. Additional searches included reference lists of relevant articles and Google Scholar. Study methodological quality was evaluated using the Joanna Briggs Institute tools, and the certainty of evidence was assessed according to the Oxford Centre for Evidence-Based Medicine. Article selection, quality assessment, and risk of bias evaluation were conducted independently by two reviewers.

resultsThe review included 17 studies conducted in different palliative care settings-hospice, home care, hospital wards-mostly cross-sectional (58.9%) and with high methodological quality (96%, range 80%-100%). The unmet needs of caregivers persisted across settings and mainly concerned information, practical support and emotional well-being. Additionally, the limited number of validated assessment tools specific for palliative care caregivers was highlighted.

conclusionCrucial unmet needs of caregivers of patients in palliative care were identified, which warrant targeted interventions to improve the well-being of caregivers and patients in palliative care. The impact of innovative digital health tools and remote systems to support caregivers should be explored.

Indexed as

CaregiversHealth Services Needs and DemandNeeds AssessmentPalliative CareHumanscaregivershome care serviceshospice carepalliative carequality of lifesupport servicessystematic reviewunmet needs

Identifiers

PMID41236197
PMCPMC12617254

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.