Evidence map›Paper›PMID 41235915›Full record

ArticleHepatology communications2025

Optimizing clinic consultations in primary biliary cholangitis: International consensus recommendations.

Heike Bantel, Gideon M Hirschfield, David E Jones, Kris V Kowdley, Ana Lleo, Robert Mitchell-Thain, Ann Moore, Carol Roberts, Atsushi Tanaka

Abstract readConsensus Statement
In one paragraph

Article in Hepatology communications, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Heike BantelDepartment of Gastroenterology, Hepatology, Infectious Diseases and Endocrinology, Hannover Medical School, Hannover, Germany.ORCID 0000-0002-8434-995
Gideon M HirschfieldThe Autoimmune and Rare Liver Programme, Division of Gastroenterology and Hepatology, Toronto General Hospital, Toronto, Ontario, Canada.
David E JonesTranslational and Clinical Research Institute, Newcastle University, Newcastle, UK.
Kris V KowdleyDepartment of Clinical research, Liver Institute Northwest, Elson S. Floyd College of Medicine, Washington State University, Seattle, Washington State, USA.ORCID 0000-0002-8553-3652
Ana LleoDepartment of Biomedical Sciences, Humanitas University Pieve Emanuele, Milan, Italy.ORCID 0000-0002-0561-7902
Robert Mitchell-ThainPBC Foundation, Edinburgh, UK.
Ann MooreArizona Liver Health, Peoria, Arizona, USA.
Carol RobertsPBCers Organization, Rochester, New York, USA.
Atsushi TanakaDepartment of Medicine, Teikyo University of Medicine, Tokyo, Japan.ORCID 0000-0002-6358-5283

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere is variability in primary biliary cholangitis (PBC) care delivery in practice, which can negatively impact disease management and patients' quality of life. Patient-provider consultations are key to ensure optimal and comprehensive disease management; however, the quality and substance of this interaction may vary. A Delphi study was carried out to provide consensus recommendations to improve and standardize consultations between providers and patients with PBC.

methodsAn international survey of 151 healthcare professionals was conducted with input from 9 PBC experts (6 physicians, 1 patient, 1 patient advocate, and 1 nurse practitioner) who formed the Delphi panel. Informed by findings of the survey, the panel used Delphi methodology to develop best practice recommendations with the aim of informing the broader care framework. Consensus was defined as ≥75% agreement among panel members.

resultsWe identified 15 best practice recommendations across 3 principal areas: "patient-provider discussions at diagnosis/first consultation," "symptom assessment and ongoing management," and "wider care and support." These consensus-based recommendations are a resource for providers to help address patient needs around symptom burden, referrals to specialists other than hepatologists, and connection to patient support organizations.

conclusionWe provide specific recommendations for providers to optimize consultation for patients with PBC with the aim of improving care and patient satisfaction.

Indexed as

Liver Cirrhosis, BiliaryReferral and ConsultationDelphi TechniqueHumansSurveys and QuestionnairesDelphi studyfatigueprimary biliary cholangitispruritussicca syndromesymptom assessment

Identifiers

PMID41235915
PMCPMC12614670

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.