Evidence map›Paper›PMID 41234322›Full record

ArticleInnovation in aging2025

Aging in rural areas: balancing land, care, and connection of family caregivers of persons with dementia: a qualitative analysis.

Jasmine Santoyo-Olsson, Mara Rosenberg, Catherine Chesla, Veronica Yank

Abstract read
In one paragraph

Article in Innovation in aging, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Jasmine Santoyo-OlssonDivision of Geriatrics, University of California, San Francisco, San Francisco, California, United States.ORCID https://orcid.org/0000-0002-5602-1148
Mara RosenbergDivision of Geriatrics, University of California, San Francisco, San Francisco, California, United States.
Catherine CheslaFamily Health Care Nursing, University of California, San Francisco, San Francisco, California, United States.ORCID https://orcid.org/0000-0002-2380-1834
Veronica YankDivision of General Internal Medicine, University of California, San Francisco, San Francisco, California, United States.

Funding

VARC CoreP30AG044281 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Louise C. Walter · 2013 to 2026
$19.9M
RESOURCE CENTER FOR AGING RESEARCH IN DIVERSE POPULATIONP30AG015272 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Torsten Brian Neilands · 1997 to 2026
$19.5M
RESEARCH TRAINING IN GERIATRIC MEDICINET32AG000212 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Alexander Keliimoeanu Smith · 1991 to 2026
$7.7M
Evaluating the Effectiveness of an Online Small-Group Self-Management Workshop for Rural Caregivers of Individuals with Alzheimer Disease and Related DementiasR01AG057855 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI YANK, VERONICA · 2018 to 2022
$3.9M
NIA NIH HHS P30 AG015272NIA NIH HHS P30 AG044281NIA NIH HHS R01 AG057855NIA NIH HHS T32 AG000212
6 · The paper itself

Abstract

Background and Objectives: Caregiving for people with dementia is especially challenging in rural areas of the United States, where services and support are often limited. This study explores how contextual factors-environmental conditions, resource availability, and family and social dynamics-intersect to shape experiences of rural family caregivers. Research Design and Methods: This secondary analysis uses qualitative data from a nationwide randomized controlled trial of an online workshop for rural family caregivers. Semi-structured interviews with 55 participants explored how living in a rural, farming, or small town area influenced their caregiving experiences. Narrative analyses were conducted to identify themes. Results: Three themes emerged: navigating rural tranquility and environmental challenges, caregiving in resource-limited settings, and variable support from family, friends, and neighbors. Caregivers described the dual impact of their environment-while rural tranquility and perceived safety were valued, they were offset by the need for constant vigilance and the physical demands of land maintenance when caring for a person with dementia. Caregivers also reported challenges accessing specialized care, citing limited availability and inadequate dementia-specific communication from providers that impeded access to information and resources. As a result, many managed care independently to fill critical gaps. While family support was essential for some, it was not always available. Despite familiar surroundings, many caregivers felt isolated, as friends or neighbors remained distant observers rather than hands-on helpers. Discussion and Implications: These findings highlight the complex realities of rural dementia caregiving, where environmental conditions, resource limitations, and social factors intersect to shape caregiver experiences. Aging in rural areas offers comfort but burdens caregivers significantly. Addressing gaps in service accessibility, improving provider communication, and strengthening informal support networks are critical steps toward reducing caregiver burden and enhancing well-being for caregivers and people with dementia.

Indexed as

Aging in placeCaregivingPhysical environmentRural agingSocial isolation

Identifiers

PMID41234322
PMCPMC12605716

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.