ArticleResearch involvement and engagement2025
The perspectives of people with lived experience, families, and researchers with the manuscript writing process in mental health and substance use research: a qualitative study.
Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Co-Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research: A Qualitative Study and Guidance Document.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundEngaging people with lived experience and their families (PWLE/F) as partners in mental health and substance use research can have a positive impact. One way to understand this engagement process and its impact is by reporting on it in peer-reviewed papers. However, little is known about the experiences of PWLE/F and researchers regarding the reporting of engagement activities in peer-reviewed papers and navigating the writing process for such publications.
methodsThis qualitative descriptive study aimed to explore the experiences of PWLE/F and researchers with the writing process for engagement in mental health and substance use research. Separate from participants, PWLE/F were engaged in all phases of the study as partners during the research process. Interviews were conducted with 13 PWLE/F and 12 researchers across Canada via Zoom. Interviews were analyzed using reflexive thematic analysis.
resultsThree themes captured the experiences of PWLE/F: navigating uncharted territories, the disclosure dilemma, and paving the way for meaningful co-authorship. Four themes represented the experiences of researchers: prioritizing informed co-authorship, frustrations with reporting on engagement, navigating how and when to report on engagement, and finding clarity amidst ambiguity.
conclusionsThis study sheds light on the complex experiences of PWLE/F and researchers with the writing process for engagement-focused papers. Overall findings indicate a need for clear guidance for both researchers and PWLE/F involved in mental health and substance use research projects, particularly around what to report on and how to meaningfully collaborate in peer-reviewed papers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.