Evidence map›Paper›PMID 41230640›Full record

ArticleJournal of health psychology2026

Contested illness and communication: Positioning long Covid in online discussion forums.

Sally Sargeant, Sarah Wilkinson, Mimirose Lorraway, Suzanne McDonald

Abstract read
In one paragraph

Article in Journal of health psychology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Sally SargeantFaculty of Health, Southern Cross University, Coolangatta, Queensland, Australia.ORCID 0000-0003-0924-774X
Sarah WilkinsonFaculty of Health, Southern Cross University, Coolangatta, Queensland, Australia.
Mimirose LorrawayDepartment of Communities and Justice, Lismore, NSW, Australia.
Suzanne McDonaldFaculty of Health, Southern Cross University, Coolangatta, Queensland, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The World Health Organization (WHO) officially acknowledged long COVID as a post COVID-19 condition in 2021. Emerging research shows that long COVID may be considered a contested illness due to unknown causal mechanisms, diagnostic uncertainty, poor recovery/treatment outcomes and people reporting illness dismissal experiences when seeking healthcare. Informed by the sick role and positioning theories, this study explored people's experiences of seeking healthcare for long COVID by examining posts in two online forums (Mayo Clinic Connect and Reddit, from June and July 2023). Template analysis helped to identify12 forum threads containing a total of 305 posts. Inductive thematic analysis of posts identified three themes: (a) 'The concept of time', (b) 'The importance of symptom legitimacy', and (c) 'Responding to diagnostic dismissal'. Healthcare professionals are critical in validating the patient experience without a formal long COVID diagnosis, and in supporting long COVID recovery needs by acknowledging heterogeneity and diagnostic difficulties.

Indexed as

CommunicationCOVID-19Patient Acceptance of Health CareSocial MediaHumansSARS-CoV-2contested illnesslong COVIDonline forumspositioning theorysick role theory

Identifiers

PMID41230640
PMCPMC13191052

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.