ArticleJMIR research protocols2025
Digital Health Tool for Preventing Blindness From Diabetic Retinopathy: Protocol for a Qualitative Study.
Article in JMIR research protocols, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundDiabetic retinopathy (DR), a leading cause of preventable blindness among working-age adults, leads to worse health outcomes among Black, Latine, and individuals with lower income in comparison to other ethnic, racial, and socioeconomic groups in the United States.
objectiveWe aim to engage community members directly to identify barriers and facilitators of DR screening and co-design a digital health tool that is accessible, user-friendly, and community-responsive.
methodsWe conducted focus groups with individuals from the Greater New Haven, Connecticut area, aged 18 years or older, and diagnosed with diabetes to (1) conduct a comprehensive disease-management needs assessment and (2) inform the development of a community-responsive digital health tool to optimize DR education and to increase access to DR screening in high-risk populations. We transcribed the focus group interviews, used rapid qualitative analysis to generate themes, and completed affinity mapping to identify content and features for a digital health tool for preventing blindness from DR.
resultsWe recruited and interviewed 19 individuals (13/19, 68% female; 9/19, 47% Black; 5/19, 26% Hispanic; 2/19, 11% Native American or Alaska Native) for 4 focus groups. Over 94% (18/19) had access to smart devices other than a computer. Participants self-reported mean hemoglobin A
conclusionsWe anticipate that this study will characterize the experiences of people living with diabetes. Using a community-led approach,we will continue to analyze the data that will generate insights regarding the key features, content, and benefits that are most important for the creation of a digital health tool for DR prevention. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/65894.
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