Evidence map›Paper›PMID 41212392›Full record

ReviewPharmacoEconomics2026

Improving Collaborative Engagement in Health State Valuation: A Scoping Review of Current Practices and Emerging Recommendations.

Philip A Powell, Victoria Gale, Gurdas Singh, Anthea Sutton, Janine Verstraete, Nancy Devlin, Michael Herdman, Simone Schieskow, Jill Carlton

Abstract readScoping ReviewReview
In one paragraph

Review in PharmacoEconomics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Philip A PowellSheffield Centre for Health and Related Research, School of Medicine and Population Health, University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, UK. p.a.powell@sheffield.ac.uk.ORCID http://orcid.org/0000-0003-1169-3431
Victoria GaleSheffield Centre for Health and Related Research, School of Medicine and Population Health, University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, UK.
Gurdas SinghGurdas Singh Consulting, London, UK.
Anthea SuttonSheffield Centre for Health and Related Research, School of Medicine and Population Health, University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, UK.
Janine VerstraeteDepartment of Paediatrics and Child Health, University of Cape Town, Cape Town, South Africa.
Nancy DevlinMelbourne School of Population and Global Health, University of Melbourne, Melbourne, VIC, Australia.
Michael HerdmanSaw Swee Hock School of Public Health, National University of Singapore, Singapore, Singapore.
Simone SchieskowDepartment of Health Economics and Health Care Management, School of Public Health, Bielefeld University, Bielefeld, Germany.
Jill CarltonSheffield Centre for Health and Related Research, School of Medicine and Population Health, University of Sheffield, Regent Court, 30 Regent Street, Sheffield, S1 4DA, UK.

Funding

EuroQol Research Foundation 1711-RA
6 · The paper itself

Abstract

BACKGROUND AND

objectiveCollaborative engagement with individuals invested in or affected by health research, beyond researchers themselves, is advantageous and encouraged by major funding bodies. However, the degree of collaborative engagement in health state valuation is unclear. A scoping review was conducted to (i) identify recommendations on best practice in collaborative engagement in health economics and related literature; (ii) identify examples of collaborative engagement in valuation studies; and (iii) map (ii) onto (i) to identify current practice and future recommendations.

methodsEight databases were searched in March-May 2024, with grey literature searches in August-September 2024. For objective (i), reports or manuscripts in health economics or patient-reported outcome measure development/evaluation of any date providing recommendations for collaborative engagement were included. For objective (ii), articles published since 2019 featuring health state valuation and collaborative engagement were included. Best practice recommendations were extracted and thematically synthesised. Examples of collaborative engagement were extracted and mapped against recommendations.

resultsTwenty-two records featuring recommendations and 15 valuation studies were included. A 15-item framework of emerging best practice recommendations for collaborative engagement was synthesised. Most examples of collaborative engagement involved patients and/or experts helping inform health states for valuation. There was no evidence for 9 out of 15 synthesised recommendations having been applied in any of the valuation studies and only minimal evidence was extracted for the remaining six.

conclusionsCollaborative engagement in health state valuation is underdeveloped and unaligned with literature recommendations. A 15-point framework has been developed as a strategic starting point for developing guidance to improve practice in the field.

Indexed as

Cooperative BehaviorEconomics, MedicalHealth StatusHumansPatient Reported Outcome Measures

Identifiers

PMID41212392
PMCPMC12858505

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.