ArticleFrontiers in medicine2025
Information needs and barriers to patient-centered care in oncology: EtnobreastHER2, an ethnographic study with HER2+ MBC patients and their healthcare providers.
Article in Frontiers in medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Introduction and objectives: Qualitative evidence regarding the structural barriers embedded in healthcare ecosystems impacting Human Epidermal Growth Factor Receptor 2 metastatic breast cancer (HER2+ MBC) patients' communication and information needs is scarce. This study explored patient and healthcare professionals' perspectives on said structural barriers and communication delivery. Methods: Ethnographic, qualitative, observational, multicenter and cross-sectional study with HER2+ MBC patients and Health Care Professionals. Qualitative data collected through remote semi-structured interviews with patients ( Results: Regarding the communication and information needs of patients, there were four areas these were lacking most: (1) disease and treatment, (2) psychosexual support, (3) navigation of the healthcare and social security systems to reduce the financial burdens, and (4) patient associations. In reference to delivery of information from healthcare professionals, there were four areas that were lacking: (1) time, (2) interpersonal skills and communications training, (3) specialized oncology nursing training, and (4) lack of an evaluation system assessing patient-centered care and patient satisfaction. Conclusion: Results emphasize how structural barriers embedded in healthcare systems can lead to and intensify information and communication gaps, which therefore emphasizes that to provide optimal, patient-centric care, these structural barriers must be addressed.
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