Evidence map›Paper›PMID 41201744›Full record

ArticleJournal of general internal medicine2026

Patient Engagement Activities and Infrastructure Among US Veterans Affairs National Research Networks.

Tracy L Sides, Jennifer Wisdom, Malloree M Argust, Erin C Amundson, Diana Burgess, Laura Meis, Agnes C Jensen, Erin E Krebs

Abstract read
In one paragraph

Article in Journal of general internal medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Tracy L SidesCenter for Care Delivery and Outcomes Research (CCDOR), Minneapolis Veterans Affairs (VA) Health Care System, Minneapolis, MN, USA. tracy.sides@va.gov.
Jennifer WisdomWisdom Consulting LLC, New York, NY, USA.
Malloree M ArgustCenter for Care Delivery and Outcomes Research (CCDOR), Minneapolis Veterans Affairs (VA) Health Care System, Minneapolis, MN, USA.
Erin C AmundsonCenter for Care Delivery and Outcomes Research (CCDOR), Minneapolis Veterans Affairs (VA) Health Care System, Minneapolis, MN, USA.
Diana BurgessCenter for Care Delivery and Outcomes Research (CCDOR), Minneapolis Veterans Affairs (VA) Health Care System, Minneapolis, MN, USA.
Laura MeisCenter for Care Delivery and Outcomes Research (CCDOR), Minneapolis Veterans Affairs (VA) Health Care System, Minneapolis, MN, USA.
Agnes C JensenCenter for Care Delivery and Outcomes Research (CCDOR), Minneapolis Veterans Affairs (VA) Health Care System, Minneapolis, MN, USA.
Erin E KrebsCenter for Care Delivery and Outcomes Research (CCDOR), Minneapolis Veterans Affairs (VA) Health Care System, Minneapolis, MN, USA.

Funding

HSRD VA SDR 24-121U.S. Department of Veterans Affairs SDR 24-121
6 · The paper itself

Abstract

backgroundMeaningful engagement of patients in the research process is a growing component of learning health systems; however, few studies have examined efforts to facilitate or foster patient-engaged research among large healthcare organizations.

objectiveTo describe patient engagement activities and infrastructure among the seven national research networks funded by US Veterans Affairs (VA) Health Systems Research (HSR).

designWe conducted an environmental scan comprised of (1) structured searches of peer-reviewed publications and other publicly available documents and (2) qualitative, semi-structured group interviews with VA HSR research network representatives.

participantsStaff and leaders with knowledge of their research network's engagement-related activities. APPROACH: We used principles of thematic analysis and content analysis to code and categorize networks' engagement activities and key considerations identified through the environmental scan. KEY

resultsWe identified 129 discrete engagement-related activities across the seven VA HSR research networks in three domains of (1) facilitating patient-engaged research, (2) network engagement infrastructure, and (3) building and maintaining relationships with partners. The number and types of reported activities varied across the networks. All five networks with a current or planned patient engagement group budgeted for staff effort and patient compensation, and offered patient engagement services that spanned research and care implementation projects. We identified five themes essential to engagement infrastructure (supportive network environment; team environment and relationship building; patient engagement group characteristics; flexibility and adaptability; and efficiency).

conclusionsThis work documents patient engagement activities and infrastructure among seven VA-funded national research networks within VA's integrated learning health system. Network representatives' experiences highlight important considerations for developing and sustaining patient engagement infrastructure. Future research is needed to examine quality, outcomes, and costs of patient engagement services within different contexts, and how this infrastructure could best be deployed to meaningfully incorporate patient perspectives across learning health system improvement cycles.

Indexed as

Health Services ResearchLearning Health SystemPatient ParticipationUnited States Department of Veterans AffairsHumansUnited Statesengagement infrastructurelearning health systemspatient engagementsocio-technical infrastructureveterans

Identifiers

PMID41201744
PMCPMC12928167

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.