ArticleAfrican journal of disability2025
Amplifying voices: The transformative power of voice and voice economy.
Article in African journal of disability, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Background: Parents of children with disabilities often experience marginalisation and exclusion from decision-making processes. The concept of 'voice' as identity and agency is central to addressing these injustices. The Parent Network (PN) and Let's Talk Parent Tool (LTP) were created to amplify these voices and promote inclusive participation. Objectives: This study explores the conceptual foundations and practical implementation of the PN and LTP. It investigates how these tools empower parents, particularly mothers, to engage in policy dialogue and advocate systemic change. Method: Using a qualitative descriptive approach, data were gathered in July-August 2023 from two purposively selected key informants and supporting grey literature. A WhatsApp-based focus group enabled rich, reflective responses. Data were thematically analysed using ATLAS.ti, with iterative coding to identify themes. Results: Themes revealed the PN's role in reducing isolation, enhancing self-representation and building parent-led networks across all South African provinces. The LTP tool supports policy monitoring by allowing users to document accessibility barriers. Offline functionality and multilingual support increase accessibility for digitally marginalised families. Conclusion: The PN and LTP create transformative spaces where parents reclaim their voices and influence decisions that affect their lives. These tools address systemic inequities by promoting emotional safety, digital inclusion and local leadership. Contribution: This study contributes a replicable model for digital voice empowerment. It highlights how community-driven platforms can support participatory policy development and build a 'voice economy' that values lived experience as a catalyst for social transformation.
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