ArticleJPEN. Journal of parenteral and enteral nutrition2026
Caring for the child with intestinal failure on home parenteral nutrition: A scoping review.
Article in JPEN. Journal of parenteral and enteral nutrition, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Caring for the child with intestinal failure on home parenteral nutrition: A scoping review.JPEN. Journal of parenteral and enteral nutrition · 2026Article
- Bridging the Gap: The Need for a Nurse-Led Transition-of-Care Education Program to Improve Outcomes for Pediatric Patients on Home Parenteral Nutrition (HPN).Gastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and AssociatesArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChildren with intestinal failure have significant long-term medical needs that require continual complex procedures provided by the family caregiver in the home. This contributes to a high burden of care, leading to increased stress, anxiety, and depression. Understanding caregivers' perceptions of the homecare experience will augment healthcare providers' knowledge of how to prepare a family to provide care in the home setting.
methodsThis study focused on the caregiving experience by examining the current literature. A scoping review was conducted using the Arksey and O'Malley methodology. Comprehensive searches on the caregiver of a child with intestinal failure receiving home parenteral nutrition were conducted in PubMed, Cumulative Index to Nursing and Allied Health Literature, Scopus, and Embase. Two reviewers screened the abstracts by title and abstract. One reviewer extracted then descriptively and thematically analyzed data to map the current evidence.
resultsThe initial search yielded 313 total articles. After inclusion and exclusion criteria were applied, a total of 15 relevant articles were included. Of the 15 studies, 5 studies described the caregiver's quality of life, 5 studies described caregiver's discharge preparedness, 3 studies discussed caregiver well-being (stress, anxiety, and depression), and 2 studies described the caregiver daily experience of providing care.
conclusionPreparing families to care for children with intestinal failure in the home may bolster caregiver preparedness but also impose a significant burden. Developing programs that offer optimal training, support, and interventions for caregivers can help alleviate stress and improve outcomes for both children and their families.
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Registered trials
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