Evidence map›Paper›PMID 41191272›Full record

ArticleJournal of autism and developmental disorders2025

Practices of Self-Advocacy and Their Implications From the Perspectives of Transition-Age, Young Adults With Intellectual and/or Developmental Disabilities.

K M Schmarder, D B Axelrod, R Agarwal, J A Sangoi, E M Jaisle, K Mulet, L R Sabates, A R Laird, E D Musser

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Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

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No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

9 authors.

K M SchmarderDepartment of Psychology, Florida International University, Miami, FL, USA. kschm039@fiu.edu.ORCID http://orcid.org/0009-0001-4975-1679
D B AxelrodDisability Services, Columbia University, New York, NY, USA.ORCID http://orcid.org/0000-0001-6389-6252
R AgarwalDepartment of Health Promotion & Disease Prevention, Robert Stempel College of Public Health & Social Work, Florida International University, Miami, FL, USA.ORCID http://orcid.org/0000-0003-0728-2306
J A SangoiDepartment of Psychology, Florida International University, Miami, FL, USA.ORCID http://orcid.org/0009-0009-7435-6708
E M JaisleDepartment of Psychology, Florida International University, Miami, FL, USA.ORCID http://orcid.org/0000-0003-4882-7501
K MuletDepartment of Psychology, Florida International University, Miami, FL, USA.
L R SabatesDepartment of Psychology, Florida International University, Miami, FL, USA.
A R LairdScientific Director of FIU Embrace Center for Advancing Inclusive Communities, Florida International University, Miami, FL, USA.ORCID http://orcid.org/0000-0003-3379-8744
E D MusserDepartment of Psychology, Barnard College, Columbia University, New York, NY, USA.ORCID http://orcid.org/0000-0003-0966-4068

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe purpose of the study is to characterize the practices of self-advocacy, as well as their impact on family life, among transition-age adults with intellectual and/or developmental disabilities (IDD; i.e., autism, intellectual disability) enrolled in an inclusive post-secondary education (IPSE) program. Researchers centered young adult voices, which in academic discourse have been traditionally marginalized in favor of centering voices of parents.

methodsFocus groups with participants (n = 29) elicited perspectives on programmatic elements, practices of self-advocacy, and student-parent relationships.

resultsFindings highlighted student perspectives that: (1) caring for yourself and speaking up/standing up for yourself are both practices of self-advocacy; (2) understanding their own roles and context, self-confidence, and the openness of the person they were self-advocating to may serve as facilitators or barriers to self-advocacy; (3) parents have a role in introducing and reinforcing self-advocacy skills for young adults; and (4) relationships with their families changed during involvement in the IPSE program, with some reporting use of self-advocacy skills as a point of conflict with their parents.

conclusionYoung adults with IDD report unique practices of self-advocacy such that they include caring for oneself as self-advocacy. Centering their voices may help inform how to best support their transition to independence and facilitate self-advocacy on small (e.g., with family and peers) and large (e.g., with organizations and policy) scales.

Indexed as

AutismInclusive post-secondary educationIntellectual disabilitySelf-advocacyTransition to adulthood

Identifiers

PMID41191272

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.