Evidence map›Paper›PMID 41190005›Full record

ArticleJournal of multimorbidity and comorbidity

Patient-reported quality of life (QoL) measurements in adults with multiple long-term conditions: A scoping review protocol.

Marta Santillo, Laura J Gray, Hannah M L Young, Jonathan A Batty, Claire Brockett, Vishal R Aggarwal, Thomas Beaney, Lihua Wu, Sivesh Kamarajah, Nathan Davies and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of multimorbidity and comorbidity. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Marta SantilloNuffield Department of Primary Care Health Sciences, Medical Sciences Division, University of Oxford, Oxford, UK.
Laura J GrayDepartment of Population Health Sciences, University of Leicester, Leicester, UK.
Hannah M L YoungNIHR Leicester Biomedical Research Centre, University of Leicester and University Hospitals of Leicester NHS Trust, Leicester, UK.
Jonathan A BattyLeads Institute of Cardiovascular and Metabolic Medicine, School of Medicine, Faculty of Medicine and Health, University of Leeds, Leeds, UK.
Claire BrockettSchool of Mechanical, Aerospace and Civil Engineering, University of Sheffield, Sheffield, UK.
Vishal R AggarwalSchool of Dentistry, Faculty of Medicine and Health, University of Leeds, Leeds, UK.
Thomas BeaneyThe George Institute for Global Health, Imperial College London, London, UK.
Lihua WuSchool of Nursing, Allied and Public Health, Faculty of Health, Science, Social Care and Education, Kingston University London, London, UK.
Sivesh KamarajahDepartment of Applied Health Sciences, University of Birmingham, Birmingham, UK.
Nathan DaviesPatient and Public Representative, Wales, UK.
Nia RobertsBodleian Health Care Libraries, University of Oxford, Oxford, UK.ORCID https://orcid.org/0000-0002-1142-6440
Tanya MacKayHead of Research and Involvement, McPin Foundation, London, UK.
Megan A KirkNuffield Department of Primary Care Health Sciences, Medical Sciences Division, University of Oxford, Oxford, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: This scoping review will systematically map the evidence on Patient Reported Outcome Measures (PROMS) used to assess quality of life (QoL) in adults with multiple long-term conditions (MLTC) across all healthcare and community settings. Rationale: Research on patient-reported QoL in adults with MLTC is limited. Existing measures are mostly generic and may lack sensitivity to the complexity and heterogeneity of MLTC. This review will examine PROMs used in MLTC research, and identify gaps in QoL measurement. Inclusion/Exclusion criteria: Quantitative, qualitative, or mixed-methods studies, and pre-specified grey literature, reporting QoL tools for adults with any combination of physical and/or mental MLTC will be included. Single conditions, comorbidity, or non-adult populations will be excluded. Methods: Following established scoping review guidelines, a systematic search strategy, developed with a librarian, will cover fivedatabases (e.g., MEDLINE, Embase, PsychINFO, CINAHL), plus grey literature and citation tracking. English-language publications with no restrictions on geographic location or publication date will be considered. After de-duplication, two reviewers will independently screen citations based on predefined inclusion criteria. Discrepancies will be resolved with a third reviewer. A pre-specified data extraction form to capture qualitative and quantitative data will be pilot tested. An 11-member patient and public advisory group will be established and stakeholder consultation will be conducted. Findings will be summarised using tables, figures and narrative synthesis and disseminated widely for multiple audiences. Discussion: This review will highlight QoL measurement gaps, inform future development of tailored QoL PROMs for MLTC populations, and contribute to national or global MLTC research priorities.

Indexed as

multimorbiditymultiple long-term conditionspatient-reported outcome measuresquality of lifescoping review

Identifiers

PMID41190005
PMCPMC12580504

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.