ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2025
Family perceptions of the transition from hospital to home palliative care: a phenomenological study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Development and expert consensus validation of a technological resource to support the integration of palliative care from hospital to home: A Delphi study.Palliative & supportive care · 2026Article
- From the hospital to the community: reshaping the palliative care paradigm.Frontiers in public health · 2026Article
Corrections and comments
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Authors and funding
3 authors.
Funding
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Abstract
purposeHome palliative care allows people in a palliative situation to remain in the comfort of their own homes. However, this transition poses significant challenges to family members, requiring logistical, physical, and emotional adaptations. This study aimed to explore the lived experiences of family members caring for a person in a palliative situation at home, focusing on the challenges, emotions, and coping strategies during the transition from hospital to home.
methodA descriptive phenomenological study was conducted with 20 family members involved in the care of patients followed by three community palliative care teams in Portugal. Data were collected through individual interviews and analyzed using Giorgi's method.
resultsThree themes emerged: (1) Emotional and Relational Experience of the Family Member, (2) Family's Challenges and Adaptation, and (3) Support for the Family. Despite the burdens, care is viewed as a moral and emotional responsibility. Support from palliative care teams and self-directed learning were key coping strategies.
conclusionsThe study deepens understanding of the family experience during the transition to home palliative care, highlighting the complexity of this process and the need for emotional, organizational, and educational support.
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