ArticleJournal of perinatology : official journal of the California Perinatal Association2026
Health-related quality of life among families of children with severe bronchopulmonary dysplasia.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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6 authors.
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Abstract
objectivesWe aimed to profile the family impact, specifically parental health-related quality of life (HRQoL) and family functioning, of children discharged from a quaternary referral program with the most severe forms of bronchopulmonary dysplasia (BPD). STUDY
designWe collected cross-sectional data through telephone interviews with 282 families of children aged 18 months to 11 years who had been discharged from a BPD referral program.
resultsParental HRQoL and family functioning were not associated with the child's age, despite improvements in the children's health and respiratory morbidity with age. Many medical issues negatively impacted parental HRQOL and family functioning. The health outcome most strongly associated with decreased parental HRQoL and family functioning was an autism diagnosis, followed by use of feeding tube.
conclusionsAmong families of children discharged from a quaternary BPD program, family impact was not associated with child age and was impacted by a wide range of health outcomes in their children.
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