Evidence map›Paper›PMID 41181375›Full record

ReviewPalliative care and social practice2025

Autonomy in adolescents in palliative care and its biopsychosocial impact: A systematic review.

Ana Raquel Castro, Joana Brandão Silva, António Pereira Neves, João Rocha Neves, Hugo Ribeiro, Marília Dourado

Abstract readReview
In one paragraph

Review in Palliative care and social practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Ana Raquel CastroFaculty of Medicine, University of Coimbra, Portugal.
Joana Brandão SilvaFaculty of Medicine, University of Coimbra, Portugal.
António Pereira NevesDepartment of Biomedicine-Unit of Anatomy, Faculty of Medicine of University of Porto, Portugal.
João Rocha NevesDepartment of Biomedicine-Unit of Anatomy, Faculty of Medicine of University of Porto, Portugal.
Hugo RibeiroFaculty of Medicine, University of Coimbra, Portugal.ORCID https://orcid.org/0000-0001-6623-7420
Marília DouradoFaculty of Medicine, University of Coimbra, Portugal.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Adolescence is a period of significant physical, psychological, and social changes, which can be intensified by the diagnosis of serious or chronic illnesses. This makes promoting autonomy in palliative care particularly challenging. Aim: The present review aimed to identify factors and strategies that promote the autonomy of adolescents in palliative care. Design: We conducted a systematic review following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, searching PubMed, Web of Science, and Scopus. This systematic review synthesized existing literature and evidence regarding communication, involvement, and psychosocial support strategies in adolescent palliative care. Methods: The study examined various tools and models, including Voicing My Choices, Building Our Solutions Together for Pediatric Advance Care Planning (BOOST-pACP), and the Family-Centered Advance Care Planning (FACE) model, to evaluate their effectiveness in facilitating communication, family support, and decision-making. Results: Effective communication tools and family-centered approaches are crucial for promoting adolescent autonomy. Strategies focused on open communication, psychosocial support, and active adolescent involvement in decisions can enhance autonomy, although further research is needed to assess their effectiveness. Conclusion: Implementing communication facilitation, psychosocial support, and adolescent involvement strategies is essential. Despite the need for more evidence, the review offers a set of recommendations to support the autonomy of adolescents in palliative care.

Indexed as

adolescenceautonomyclinical complexityempowerment in healthcarepediatric palliative carepsychosocial support systems

Identifiers

PMID41181375
PMCPMC12579122

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.