Evidence map›Paper›PMID 41179850›Full record

ArticleFrontiers in health services2025

From experience to a learning health system: peer-to-peer perspectives and implications for healthcare navigation in Alberta, Canada.

Fakhriyya Aghabayli, Ingrid Nielssen, Luz Aida Zapata-Cardona, Safa Ahmed, Chisom Ezemenahi, Sukhwant Parmar, Boman Fahimi, Maryem Hamid Khan, Huda Hamid Khan, Naxhielli Donaji Mendez Muniz and 6 more

Abstract read
In one paragraph

Article in Frontiers in health services, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Impact of a Health Research Training Program on Patient and Community Partners, and Researchers: A Qualitative Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Fakhriyya AghabayliAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Ingrid NielssenAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Luz Aida Zapata-CardonaAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Safa AhmedAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Chisom EzemenahiAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Sukhwant ParmarAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Boman FahimiAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Maryem Hamid KhanAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Huda Hamid KhanAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Naxhielli Donaji Mendez MunizAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Ugochukwu OsigweAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Shaziah ZaidiAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Xingye ShiAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Kiran NabilDepartment of Continuing Education, University of Calgary, Calgary, AB, Canada.
Paul FairieAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.
Maria Jose SantanaAlberta Strategy for Patient-Oriented Research Support Unit, Calgary/Edmonton, AB, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Healthcare navigation services help individuals access timely and appropriate care within complex health systems, particularly those facing systemic and equity-related barriers. Understanding navigation experiences is essential to addressing service gaps and improving health outcomes. This study sought to examine the lived experiences of navigation in Alberta to identify inequities within existing programs and to provide recommendations for strengthening person-centered navigation within a learning health system framework. Materials: This was a qualitative, peer-to-peer, patient-oriented research study. The study design followed the Patient and Community Engagement Research process of SET-COLLECT-REFLECT. The SET phase engaged patient and public partners in discussions to co-design the research question and the study design. The COLLECT phase included focus groups and interviews with adult residents in Alberta who had been navigated ( Results: Of the 26 participants, over 75% were women (77% of the Navigated group and 75% of the Navigator group) aged 41-50 years old. Half of those in the Navigator group had provided their service for more than 5 years and had received specialized training in healthcare navigation. The following themes were identified: (1) participants' situations and circumstances, (2) navigation experiences, (3) perspectives, (4) need for healthcare navigators, (5) the navigator role, (6) current best practices and challenges, and (7) training and support. Five recommendations included expanding the scope and enhancing awareness of navigation programs with a personalized approach and embedded evaluation and developing and formalizing navigation training programs. Conclusion: This study identified gaps and opportunities in healthcare navigation programs from both navigator and navigated perspectives. The findings provide patient-centered recommendations to strengthen navigation services and their integration into Alberta's learning health system that can enhance equitable access, healthcare experiences, and outcomes.

Indexed as

healthcare navigationlearning health systemspatient engagementpatient navigationpeer-to-peer researchperson-centered care

Identifiers

PMID41179850
PMCPMC12575376

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.