Evidence map›Paper›PMID 41176692›Full record

ArticleCancer2025

Evaluating portal-enabled elicitation of patients' health-related values in solid tumor oncology: A qualitative content analysis.

Carrie Sha, Erin Santos, Jaime Gilliland, Kathleen A Lynch, William E Rosa, Judith E Nelson, Andrew S Epstein

Abstract read
In one paragraph

Article in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Carrie ShaWeill Cornell Medical College, New York, New York, USA.ORCID https://orcid.org/0000-0001-7723-2668
Erin SantosMemorial Sloan Kettering Cancer Center, New York, New York, USA.
Jaime GillilandMemorial Sloan Kettering Cancer Center, New York, New York, USA.
Kathleen A LynchMemorial Sloan Kettering Cancer Center, New York, New York, USA.
William E RosaMemorial Sloan Kettering Cancer Center, New York, New York, USA.ORCID https://orcid.org/0000-0002-0680-8911
Judith E NelsonWeill Cornell Medical College, New York, New York, USA.ORCID https://orcid.org/0000-0003-3624-3111
Andrew S EpsteinWeill Cornell Medical College, New York, New York, USA.ORCID https://orcid.org/0000-0003-1808-3070

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI Nicholas D Socci · 1985 to 2026
$347.4M
NCI NIH HHS P30 CA008748
6 · The paper itself

Abstract

introductionElectronic patient portals are increasingly used to improve care and patient-clinician communication. Portal-elicited health-related values (HRVs) were evaluated as to whether they contain themes similar to those arising from nurse-led in-person discussions.

methodsHRV questionnaires, consisting of seven questions, were sent by portal to patients of five solid tumor clinics from July 2023 to August 2024. Applying a theoretical framework generated from prior analysis of in-person nurse-led discussions with patients about their HRVs, questionnaires were coded via thematic content analysis.

resultsA total of 1556 HRV questionnaires were sent to individual patients. Of 852 unique patients who returned questionnaires with response to at least one question, a random subset of 200 patients' responses (167 gastrointestinal cancers, 33 genitourinary cancers) were analyzed by an interdisciplinary team. Analysis identified five themes consistent with those previously identified from in-person discussions: cancer as threat/disruption; expression of personhood and desire to retain a sense of self; communication with loved ones and the medical team as a tool for maintaining individual agency; connection to others as core to social identity and a source of individual strength; and sources of meaning and fulfillment. Uniquely identified by our analysis of portal responses were elements of financial toxicity and spiritual and existential well-being.

conclusionElicitation of patient values through the electronic portal provides valuable insights into the HRV of patients with solid tumors. The electronic portal captures values comparable to those elicited in in-person discussions, supporting efforts to scale such initiatives while preserving the content of patients' reports as a basis for discussion of their HRVs with clinicians.

Indexed as

Medical OncologyNeoplasmsPatient PortalsAdultAgedCommunicationFemaleHumansMaleMiddle AgedPhysician-Patient RelationsQualitative ResearchSurveys and Questionnairesadvance care planningcancercommunicationgoals of carehealth information technologypatient portalsqualitative analysis

Identifiers

PMID41176692
PMCPMC13218425

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.