Evidence map›Paper›PMID 41176320›Full record

SynthesisJournal of palliative medicine2026

What Do We Know About Hospice Enrollment for Nursing Home Residents with Cognitive Disabilities? A Systematic Review.

Victoria M Winogora, Patricia W Stone, Kimberlee Grier, Lara K Dhingra, Christine E DeForge

Abstract readSystematic Review
In one paragraph

Synthesis in Journal of palliative medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Victoria M WinogoraColumbia University School of Nursing, New York, New York, USA.
Patricia W StoneColumbia University School of Nursing, New York, New York, USA.
Kimberlee GrierColumbia University School of Nursing, New York, New York, USA.
Lara K DhingraMJHS Institute for Innovation in Palliative Care, New York, New York, USA.
Christine E DeForgeColumbia University School of Nursing, New York, New York, USA.

Funding

Systems Science and Comparative and Cost-Effectiveness Research Training for Nurse Scientists (S2CER2)T32NR014205 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI Lusine Poghosyan, Jingjing Shang · 2013 to 2026
$4.2M
Hospice Use, Hospice Quality, and Related End-of-Life Outcomes in Nursing HomesR01NR020601 · NINR · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI Lara K Dhingra, Andrew Wylie Dick · 2023 to 2026
$2.7M
NINR NIH HHS R01 NR020601NINR NIH HHS T32 NR014205
6 · The paper itself

Abstract

backgroundAt least 42% of nursing home (NH) residents live with cognitive disability, commonly associated with neurocognitive disorders (e.g., dementia), defined as difficulty concentrating, learning new things, remembering, or making decisions. The population of individuals with cognitive disabilities who qualify for hospice (end-of-life [EOL] care that reduces symptoms and promotes quality of life) in NHs is increasing. However, little is known about hospice enrollment for this population. This information is essential to clarify disparities in hospice access and guide efforts to improve EOL care for this population.

objectiveTo systematically review available evidence on hospice enrollment among US NH residents with cognitive disabilities.

methodsThis review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. A comprehensive search of PubMed, CINHAL, Web of Science, and Google Scholar was conducted to identify studies. Peer-reviewed, English-language articles published before February 28, 2025, were included. The Joanna Briggs Institute Analytical Cross-Sectional Studies Appraisal Tool was used to assess study quality.

resultsWe screened 479 titles and abstracts and reviewed 36 full-text articles. Twelve studies met the inclusion criteria. In seven of the 12 studies, a substantial proportion of NH decedents with cognitive disabilities were not enrolled in hospice. Factors associated with increased likelihood of hospice enrollment at the time of death included female sex ( DISCUSSION: This review is the first to systematically examine hospice enrollment among NH residents with cognitive disabilities. Hospice enrollment varied across studies but was consistently lower for NH decedents with cognitive disabilities compared to those without. Future research should include the broader cognitive disability community to assess hospice enrollment and other EOL outcomes, clarify targets for intervention, and address barriers to care.

Indexed as

Cognition DisordersHospice CareHospicesNursing Home ResidentsAgedAged, 80 and overFemaleHumansMaleMiddle AgedUnited Statesadult and older adultcognitive disabilitydementiaend-of-life carehospice

Identifiers

PMID41176320
PMCPMC12998426

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.