Evidence map›Paper›PMID 41169639›Full record

ArticleLearning health systems2025

Developing a data visualization tool for adults with disorders of consciousness: Qualitative analysis of user perspectives.

Alison M Cogan, Shonali G Gaudino, James E Green, Lewis E Kazis, Mary D Slavin, Jeffrey C Schneider, Joseph T Giacino

Abstract read
In one paragraph

Article in Learning health systems, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Alison M CoganMrs. T. H. Chan Division of Occupational Science and Occupational Therapy University of Southern California Los Angeles California USA.ORCID https://orcid.org/0000-0002-6800-1988
Shonali G GaudinoRehabilitation Outcomes Center at Spaulding, Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital Charlestown Massachusetts USA.
James E GreenDigital Department Spaulding Rehabilitation Hospital Charlestown Massachusetts USA.
Lewis E KazisRehabilitation Outcomes Center at Spaulding, Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital Charlestown Massachusetts USA.
Mary D SlavinRehabilitation Outcomes Center at Spaulding, Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital Charlestown Massachusetts USA.
Jeffrey C SchneiderRehabilitation Outcomes Center at Spaulding, Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital Charlestown Massachusetts USA.
Joseph T GiacinoRehabilitation Outcomes Center at Spaulding, Department of Physical Medicine and Rehabilitation, Spaulding Rehabilitation Hospital Charlestown Massachusetts USA.

Funding

LeaRRN: the Learning Health Systems Rehabilitation Research NetworkP2CHD101895 · NICHD · BROWN UNIVERSITY · PI RESNIK, LINDA J. · 2020 to 2024
$6.4M
NICHD NIH HHS P2C HD101895
6 · The paper itself

Abstract

Introduction: We report on the process of using a learning health systems (LHS) approach to design a data visualization dashboard to monitor the rehabilitation progress of patients with disorders of consciousness (DoC) after severe brain injury. Methods: Our team conducted a qualitative study using informational interviews with key informants to understand informational needs and priorities for the dashboard from the perspectives of rehabilitation therapists, family members of patients with DoC, and third-party payors. We used a thematic survey approach to organize the findings with the following categories: (a) how the dashboard will be used; (b) content to be displayed; (c) organization and design of content; and (d) technical requirements. We used an iterative process to develop the dashboard, with multiple opportunities for stakeholder feedback. Results: Seven people participated in informational interviews ( Conclusions: In the unique case of patients with DoC, who cannot speak for themselves, effective communication among rehabilitation clinicians, family members or care partners, and third-party payors is highly important for optimal care. The key benefit of using an LHS approach is positioning the team to proactively design the dashboard to account for the needs and preferences of different end users.

Indexed as

consciousness disordersdata visualizationlearning health systemrehabilitationuser‐centered design

Identifiers

PMID41169639
PMCPMC12569435

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.