Evidence map›Paper›PMID 41169490›Full record

ArticleFrontiers in psychiatry2025

The assessment of caregiver burden and associated factors on the primary family caregivers for patients with moyamoya disease: a cross-sectional study.

Meng Li, Jianhua Li, Hanjiao Liu, Zhongjie Pan, Bohao Zhang, Wenling Zhang, Jiaxin Li, Kezhen Yang, Yuandong Yu, Tie Yang and 8 more

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Article in Frontiers in psychiatry, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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4 · The record

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5 · Who and what money

Authors and funding

18 authors.

Meng Li *Nursing Department, The Third People's Hospital of Henan Province, Zhengzhou, China.
Jianhua Li *Nursing Department, Nanjing Central Hospital, Nanjing, China.
Hanjiao Liu *Nursing Department, Shenzhen Hospital of Integrated Traditional Chinese and Western Medicine, Shenzhen, China.
Zhongjie PanSchool of Medicine, Zhengzhou University of Industrial Technology, Zhengzhou, China.
Bohao ZhangDepartment of Oncology, The First Affiliated Hospital of Zhengzhou University, Zhengzhou, China.
Wenling ZhangSurgical Anesthesia Department, Henan Provincial People's Hospital, Zhengzhou, China.
Jiaxin LiSchool of Medicine, Xi'an International University, Xi'an, China.
Kezhen YangNursing Department, The Third People's Hospital of Henan Province, Zhengzhou, China.
Yuandong YuNursing Department, The Third People's Hospital of Henan Province, Zhengzhou, China.
Tie YangNursing Department, The Third People's Hospital of Henan Province, Zhengzhou, China.
Dongsen LvSchool of Nursing, Xinxiang Medical University, Xinxiang, China.
Ning ZhangSchool of Nursing, Xinxiang Medical University, Xinxiang, China.
Shen LiSchool of Rehabilitation, Henan Vocational College of Tuina, Luoyang, China.
Qiong LiSchool of Nursing, Xinxiang Medical University, Xinxiang, China.
Ruipeng SongNursing Department, The Third People's Hospital of Henan Province, Zhengzhou, China.
Junxiao LiuDepartment of Operating Room, The Affiliated Cancer Hospital of Zhengzhou University, Zhengzhou, China.
Huawei LiNursing Department, The Third People's Hospital of Henan Province, Zhengzhou, China.
Junfan WeiNursing Department, Nanjing Central Hospital, Nanjing, China.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Caring for moyamoya disease (MMD) patients is a demanding, prolonged, and continuous responsibility, often resulting in a significant caregiver burden for primary family caregivers. Considering the enormous challenges faced by the primary caregiver in a family and the serious consequences of the caregiver burden, it becomes crucial to know current status and assess the factors associated with the caregiver burden. Objective: This study aimed to assess caregiver burden among primary family caregivers of MMD patients and examine its association with patients' Activities of Daily Living (ADL), caregivers' socio-demographic characteristics, and illness uncertainty. Method: A cross-sectional survey using convenience sampling was conducted in China. Data collection conducted from January to July 2024 at two tertiary hospitals in Henan province, China. A socio-demographic characteristics questionnaire, the Chinese version of Barthel Index scale, the Chinese version of Zarit burden interview scale, and the Chinese versions of Mishel illness uncertainty scale for family member were used to perform this research. The collected data were analyzed using SPSS 24.0 statistical software. Result: A total of 287 primary caregiver of patients with MMD were recruited in this survey. Of the 287 primary family caregivers of patients with MMD, 44 (15.33%) experienced mild burden, 106 (36.93%) experienced moderate burden, and 137 (47.74%) experienced severe burden. Multiple linear regression analysis revealed that marriage status ( Conclusion: This study found that nearly half of the primary family caregivers of patients with MMD had severe levels of caregiver burden, which is influenced by several factors. These findings contribute to a better understanding of the challenges faced by caregivers of MMD patients and may inform future research, clinical assessments, and supportive resource planning.

Indexed as

activities of daily livingcaregiver burdenfamily caregiverillness uncertaintymoyamoya disease

Identifiers

PMID41169490
PMCPMC12569604

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