ArticleBMC psychology2025
Capability well-being in mothers and fathers of autistic children: a cross-sectional study from China.
Article in BMC psychology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
backgroundParents of autistic children often experience reduced well-being, with most studies focusing on negative outcomes. However, fewer studies have applied capability approach to assess parental abilities to achieve positive functioning. This study aims to evaluate well-being in parents of autistic children, with a particular attention to differences between mothers and fathers.
methodsWe conducted a cross-sectional study of 366 parents of children aged 1–17 years with a definitive diagnosis in China, including 318 mothers and 48 fathers. Parental well-being was assessed using the Investigating Choice Experiments Capability Measures for Adults (ICECAP-A), which captures key domains of well-being. We employed the United Kingdom tariffs to calculate index scores of the ICECAP-A. Stepwise multivariate linear regression models were performed to identify predictors of parental well-being.
resultsThe mean score of the ICECAP-A among parents was 0.672 (SD 0.214), with a significant gender disparity (p = 0.012, rank-biserial correction = 0.131, 95%CI [0.030, 0.227]). Mothers perceived a lower level of well-being than fathers in the domains of autonomy (β=-0.022, p < 0.01) and achievement (β=-0.021, p < 0.001). Risk factors for impaired parental well-being included more severe autistic symptoms, lower socioeconomic status of parents, and a considerably longer time spent on caretaking of the child.
conclusionsProfessionals should prioritize gender-specific intervention programs tailored to the distinct needs of mothers and fathers, and actively promote and facilitate father involvement in the childcare. Evidence-based psychosocial support services need to be specifically designed for high-risk parent populations, especially those facing intensive caregiving burdens, socioeconomic disadvantages, or parenting autistic children with more severe symptoms.
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