Evidence map›Paper›PMID 41168678›Full record

ArticleInternational journal of qualitative studies on health and well-being2025

Constructing a disease management journey map from the acute decompensated heart failure journey perspective: a descriptive qualitative study.

Cai Wenqing, Liu Jie, Zhang Chen, Li Qingyin, Zhang Baolin, Zhu Keping, Su Yajing

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Article in International journal of qualitative studies on health and well-being, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

7 authors.

Cai WenqingFuwai Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College/National Center for Cardiovascular Diseases, Beijing, China.
Liu JieFuwai Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College/National Center for Cardiovascular Diseases, Beijing, China.
Zhang ChenFuwai Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College/National Center for Cardiovascular Diseases, Beijing, China.
Li QingyinFuwai Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College/National Center for Cardiovascular Diseases, Beijing, China.
Zhang BaolinFuwai Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College/National Center for Cardiovascular Diseases, Beijing, China.
Zhu KepingFuwai Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College/National Center for Cardiovascular Diseases, Beijing, China.
Su YajingFuwai Hospital, Chinese Academy of Medical Sciences & Peking Union Medical College/National Center for Cardiovascular Diseases, Beijing, China.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThis study aimed to identify patients' multidimensional needs at different phases of heart failure (HF) management from the acute decompensated heart failure (ADHF) journey perspective, providing a basis for developing full-cycle and timely disease management strategies.

methodA descriptive qualitative study was conducted at a cardiovascular specialist hospital in mainland China from January to March 2025. Purposive sampling was used to select participants. Semi-structured interviews were conducted to explore their disease management needs during the journey. Inductive content analysis was employed to analyze the interview texts and create the disease management journey map.

results18 eligible ADHF patients participated. A journey map framework was constructed based on a literature review, with its horizontal axis divided into the ADHF phase, the vulnerable phase, and the CHF phase. Through interview content analysis, 23 subcategories were extracted, which were categorized into needs, pain points, and emotions. Additionally, relevant personnel and their participation time domains were identified, thus forming the HF disease management journey map.

conclusionsMedical staff should comprehensively assess patients' needs at different phases, identify intervention targets, and gradually establish a full-cycle and timely intervention protocol to optimize patients' experience and quality of life.

Indexed as

Disease ManagementHeart FailureQuality of LifeAcute DiseaseAdultAgedChinaFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchAcute decompensated heart failuredisease managementpatient journey mapprecise managementqualitative research

Identifiers

PMID41168678
PMCPMC12581725

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