Evidence map›Paper›PMID 41160946›Full record

ArticleSocial science & medicine (1982)2025

Defining infertility: The varied criteria people in two regions of Uganda use to identify infertility in themselves and others.

Suzanne O Bell, Simon P S Kibira, Haley L Thomas, Sarah Nabukeera, Sande Slivesteri, Irene Tenda, Caitlin Kennedy, Caroline Moreau

Abstract read
In one paragraph

Article in Social science & medicine (1982), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Suzanne O BellJohns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA. Electronic address: suzannebell@jhu.edu.
Simon P S KibiraMakerere University School of Public Health, Kampala, Uganda.
Haley L ThomasJohns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Sarah NabukeeraMakerere University School of Public Health, Kampala, Uganda.
Sande SlivesteriMakerere University School of Public Health, Kampala, Uganda.
Irene TendaMakerere University School of Public Health, Kampala, Uganda.
Caitlin KennedyJohns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Caroline MoreauJohns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA; Soins Primaires et Prevention, CESP Centre for Research in Epidemiology and Population Health, U1018, Inserm, Villejuif, France.

Funding

The Hopkins Population CenterP2CHD042854 · NICHD · JOHNS HOPKINS UNIVERSITY · PI Alison Gemmill · 2021 to 2026
$3.0M
Advancing Understanding and Measurement of Infertility, Related Fears and Stigma, and Associated Consequences in Low-Resource CountriesK01HD107172 · NICHD · JOHNS HOPKINS UNIVERSITY · PI Suzanne O'Dea Bell · 2022 to 2026
$702k
NICHD NIH HHS K01 HD107172NICHD NIH HHS L60 HD113077NICHD NIH HHS P2C HD042854
6 · The paper itself

Abstract

Understanding how individuals define infertility is significant given associated stigma and psychosocial consequences, particularly in sub-Saharan Africa where infertility functions as both a medical condition and social phenomenon. Merely being perceived as infertile can trigger repercussions. A better understanding of socially defined infertility in this context will provide insight into related stigma and negative repercussions, as well as opportunities to intervene. In this study, we explore how men and women in two districts of Uganda define infertility and the criteria they use to identify it, examining how these differ by infertility type (primary, secondary) and gender. We conducted 48 in-depth interviews and 8 focus group discussions with reproductive-aged women and men across two Ugandan districts. Participants were purposively selected to balance sex, residence, parity, and infertility experiences. Data were analyzed using thematic analysis with constant comparison to identify patterns, supported by coding, memoing, and regular team discussions. Three key themes emerged: First, infertility was commonly viewed as permanent-conceptually equivalent to sterility-making secondary infertility seem paradoxical to many. Second, temporality in identifying infertility varied widely from months to decades, with notable gender differences. Third, participants employed numerous relational criteria to identify infertility, including partner characteristics, person-dependent factors (age, gender), and peer comparisons. Results suggest Ugandans use diverse and often multiple criteria to identify infertility, reflecting a complex interplay between temporal, contextual, and relational factors. This work describes the nuances of infertility as a socially constructed phenomenon in the Ugandan context, with important implications for future research and programs.

Indexed as

InfertilityAdultFemaleFocus GroupsHumansInterviews as TopicMaleMiddle AgedQualitative ResearchSocial StigmaUgandaInfertilityQualitativeSub-Saharan AfricaUganda

Identifiers

PMID41160946
PMCPMC12573620

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.