ArticleJournal of cancer survivorship : research and practice2025
Perspectives of Canadian adolescent and young adult (AYA) cancer survivors in designing a regional AYA survivorship program.
Article in Journal of cancer survivorship : research and practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
1 citing paper in PubMed.
- Exploring Key Unmet Supportive Care Needs of Adolescent and Young Adult Cancer Patients: A Qualitative Study to Inform Regional Program Development.Current oncology (Toronto, Ont.) · 2026Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAdolescents and young adults (AYA, ages 15-39 years) with cancer have distinct survivorship needs due to the unique physical, psychological, and social disruptions at this age. We sought to identify key program components of an AYA survivorship program and how to best implement these requirements.
methodsAn anonymous electronic survey was sent through the institutional electronic health record to AYA cancer survivors who completed treatment between 2015 and 2020 at the Ottawa Hospital (Ottawa, Canada). Demographic data were analyzed using descriptive statistics. Quantitative data from Likert scales were presented as frequency distributions of responses. Ranking items were sorted according to weighted mean. Qualitative data from open-ended responses were analyzed using content analysis.
resultsIn total, 85 respondents (response rate 24.9%) completed the survey. Respondents were predominantly female (79.5%), diagnosed in 2020 (25%) or 2019 (20.8%), employed full-time (61.1%), married (62.5%), and had children at diagnosis (52.8%). The top three priorities were (1) preventing new recurrences, (2) reducing anxiety and improving mental health, and (3) feeling "normal." Most respondents (78.3%) indicated that they would engage with a formal program, with a preference for electronic communication tools (86.2%). Respondents preferred a dedicated oncology provider (64.7%). Thematic analysis suggested that a focus on mental health would enhance support for survivors and increase utilization of the program.
conclusionsAYA survivorship programming in our region requires the integration of mental health supports as a key resource component to address patient-identified needs and increase program utilization. IMPLICATIONS FOR CANCER SURVIVORS: These findings highlight the need for survivorship programs to integrate robust mental health supports. This will increase program utilization and facilitate access to screening and late effects monitoring.
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Registered trials
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