Evidence map›Paper›PMID 41145157›Full record

ArticleAmerican journal on intellectual and developmental disabilities2025

Comparing Indicators of Advocacy Ability and Service Access Between Latino and White Families of Transition-Aged Youth With Autism.

Meghan M Burke, Saury Ramos-Torres, Leann Smith DaWalt, Julie Lounds Taylor

Abstract readComparative Study
PubMed Full text at PMC Publisher
In one paragraph

Article in American journal on intellectual and developmental disabilities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. The Effect of a Parent Advocacy Intervention on Service Access for Autistic Youth: The Moderating Role of Baseline Advocacy Ability.Autism research : official journal of the International Society for Autism Research · 2026
    Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Meghan M BurkeMeghan M. Burke, Vanderbilt University, Saury Ramos-Torres, University of Texas at Austin, Leann Smith DaWalt, University of Wisconsin at Madison, and Julie Lounds Taylor, Vanderbilt University Medical Center.
Saury Ramos-TorresMeghan M. Burke, Vanderbilt University, Saury Ramos-Torres, University of Texas at Austin, Leann Smith DaWalt, University of Wisconsin at Madison, and Julie Lounds Taylor, Vanderbilt University Medical Center.
Leann Smith DaWaltMeghan M. Burke, Vanderbilt University, Saury Ramos-Torres, University of Texas at Austin, Leann Smith DaWalt, University of Wisconsin at Madison, and Julie Lounds Taylor, Vanderbilt University Medical Center.
Julie Lounds TaylorMeghan M. Burke, Vanderbilt University, Saury Ramos-Torres, University of Texas at Austin, Leann Smith DaWalt, University of Wisconsin at Madison, and Julie Lounds Taylor, Vanderbilt University Medical Center.

Funding

Overall: Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center at VanderbiltP50HD103537 · NICHD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI Lea K Davis · 2020 to 2026
$10.3M
Improving Transition Outcomes for Youth with Autism through Parent Advocacy Training: A Multi-State Randomized Controlled TrialR01MH116058 · NIMH · VANDERBILT UNIVERSITY MEDICAL CENTER · PI TAYLOR, JULIE LOUNDS · 2019 to 2023
$4.1M
Adapting an advocacy services intervention for Latinx families of transition-aged youth with autism spectrum disorderR03MH129757 · NIMH · VANDERBILT UNIVERSITY · PI BURKE, MEGHAN · 2022 to 2023
$155k
NICHD NIH HHS P50 HD103537NIMH NIH HHS R01 MH116058NIMH NIH HHS R03 MH129757
6 · The paper itself

Abstract

Although access to services is critical for autistic youth, families often face challenges navigating service delivery systems. Barriers to service access are compounded among Latino families. Interventions which target advocacy ability (i.e., knowledge about services, perceived advocacy skills, and empowerment) may help families access services. By comparing advocacy ability and service access between Latino and white families, unique areas of strength and vulnerability can be identified, leveraged, and targeted in interventions. In this study, 94 parents (48 white; 46 Latino) of autistic youth completed surveys about their advocacy ability and service access. White (versus Latino) participants were significantly more knowledgeable about services, comfortable with advocacy, and empowered in the community/political system. Latino (versus white) participants reported significantly greater family empowerment.

Indexed as

Autism Spectrum DisorderAutistic DisorderEmpowermentHealth Knowledge, Attitudes, PracticeHealth Services AccessibilityPatient AdvocacyTransition to Adult CareAdolescentAdultChildFemaleHispanic or LatinoHumansMaleParentsWhite PeopleadvocacyautismfamilyLatinoservices

Identifiers

PMID41145157
PMCPMC13112408

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.