Evidence map›Paper›PMID 41139372›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2025

Adaptation of the Good Spirit, Good Life quality of life tool for remote Indigenous Australians.

Lianne Gilchrist, Leon Flicker, Dawn Bessarab, Roslyn Malay, Laurie Yambo, Betty Sagigi, Chenoa Wapau, Sarah Russell, Rachel Quigley, Caleb Rivers and 5 more

Abstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

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No citing paper in PubMed yet.

4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

15 authors.

Lianne GilchristGood Spirit Good Life Centre of Research Excellence, Centre for Aboriginal Medical and Dental Health, Medical School, University of Western Australia, Perth, Australia. lianne.gilchrist@uwa.edu.au.ORCID http://orcid.org/0000-0002-0158-2079
Leon FlickerWestern Australian Centre for Health and Ageing, Medical School, University of Western Australia, Perth, Australia.
Dawn BessarabGood Spirit Good Life Centre of Research Excellence, Centre for Aboriginal Medical and Dental Health, Medical School, University of Western Australia, Perth, Australia.
Roslyn MalayWestern Australian Centre for Health and Ageing, Medical School, University of Western Australia, Perth, Australia.
Laurie YamboWestern Australian Centre for Health and Ageing, Medical School, University of Western Australia, Perth, Australia.
Betty SagigiQueensland Health, Torres and Cape Hospital and Health Service, Thursday Island, Australia.
Chenoa WapauCollege of Medicine and Dentistry, James Cook University, Cairns, Australia.
Sarah RussellCollege of Medicine and Dentistry, James Cook University, Cairns, Australia.
Rachel QuigleyCollege of Medicine and Dentistry, James Cook University, Cairns, Australia.
Caleb RiversGood Spirit Good Life Centre of Research Excellence, Centre for Aboriginal Medical and Dental Health, Medical School, University of Western Australia, Perth, Australia.
Zoë HydeCentre for Aboriginal Medical and Dental Health, Medical School, University of Western Australia, Perth, Australia.
Esther ChaneyCentre for Aboriginal Medical and Dental Health, Medical School, University of Western Australia, Perth, Australia.
Edward StrivensCollege of Medicine and Dentistry, James Cook University, Cairns, Australia.
Christianne WhiteGood Spirit Good Life Centre of Research Excellence, Centre for Aboriginal Medical and Dental Health, Medical School, University of Western Australia, Perth, Australia.
Kate SmithGood Spirit Good Life Centre of Research Excellence, Centre for Aboriginal Medical and Dental Health, Medical School, University of Western Australia, Perth, Australia.

Funding

National Health and Medical Research Council APP1170422National Health and Medical Research Council APP1198890
6 · The paper itself

Abstract

purposeThe Good Spirit, Good Life (GSGL) assessment tool was co-developed in urban and regional Australia to address quality of life (QoL) for older Aboriginal and Torres Strait Islander peoples and inform culturally responsive care. This study aimed to determine the acceptability and validity of the GSGL tool in Australian remote settings.

methodsA co-design methodology was applied to this study. Yarning groups were conducted in 5 communities across 2 remote regions of Australia with older Aboriginal and Torres Strait Islander people. Required adaptations to the tool were refined with governance groups in each region. Forward and back translation was performed for the adapted tool with consensus achieved through an expert committee.

resultsAdaptations to the GSGL tool involved small wording changes to two items (Country/Island Home and Elder role). Five items were adapted through additional prompts and examples (culture, respect, supports and services, safety and security, basic needs). The remaining five items were retained (family and friends, community, health, spirituality, future planning). During forward and back translation, translation errors were identified with an expert language committee highlighting the importance of clear translation methods.

conclusionThe adapted GSGL tool is an acceptable QoL tool for use in health and aged care with urban, regional and remote-living Aboriginal and Torres Strait Islander Australians. When translating a tool, forward-back translation with an expert language committee is recommended to reach concordance in meaning. The adapted GSGL tool is suitable for use with an interpreter when required.

Indexed as

Quality of LifeAgedAustraliaAustralian Aboriginal and Torres Strait Islander PeoplesFemaleHumansMaleMiddle AgedReproducibility of ResultsSurveys and QuestionnairesAdaptationAgeingAssessmentIndigenousTranslationWellbeing

Identifiers

PMID41139372
PMCPMC12681452

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.