ArticleDevelopmental medicine and child neurology2026
Interventions supporting the empowerment of parent carers of children with neurodisability and other long-term health conditions: A scoping review.
Article in Developmental medicine and child neurology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
5 citing papers in PubMed.
- Empowering Parent Carers of Children With Neurodisability in Healthcare Settings: Co-Producing a Theory of Change for Intervention Development.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Exploring Parent Carer Empowerment in Childhood Onset Disability: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Caregiver Empowerment of Children With Asthma: A Literature Review.Journal for specialists in pediatric nursing : JSPN · 2026Review
- Social support network and family resilience among parents of school-age children with asthma: a cross-sectional study of current status and influencing factors.BMC pulmonary medicine · 2026Article
- What Are the Important Health and Well-Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
aimTo compile information about interventions that have been developed to support the empowerment of parent carers of children and young people aged 0 to 19 years with neurodisability (e.g. cerebral palsy, epilepsy, autism) or other long-term health conditions (e.g. asthma, diabetes, cancer).
methodSeven electronic databases and grey literature were systematically searched for potentially eligible studies and information sources. Identified sources were screened by two independent reviewers. Data were extracted using a custom tool developed by the review team, before being coded and recorded in an interactive online database. Eligibility criteria were inclusive to capture a broad range of interventions designed to address any component of parent carer empowerment.
resultsA total of 212 information sources documenting 145 interventions were included in the review and are presented in the database (https://eppi.ioe.ac.uk/eppi-vis/Review/Index/762). Parent carer-focused interventions have been developed targeting a range of aspects of empowerment; however, there were issues with implementation, sustainability, and scalability.
interpretationMany interventions have been designed to improve parent carer empowerment, targeting different aspects of parent carer behaviour. Designing further parent carer-focused interventions may not be an efficient use of limited resources. We recommend that future research should prioritize adaptation, implementation, and robust evaluation of existing interventions, or address other modifiable influences on parent carer empowerment.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.