Evidence map›Paper›PMID 41138238›Full record

ArticleAmerican journal of Alzheimer's disease and other dementias

Beyond the Primary Caregiver: A Scoping Review of Family-Centered Dementia Caregiving Programs.

Alexandra Malia Jackson, Kelly S O'Sullivan, Megan Gilligan, Raven H Weaver

Abstract readScoping Review
In one paragraph

Article in American journal of Alzheimer's disease and other dementias. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Alexandra Malia JacksonPublic Health, Pacific University, Forest Grove, OR, USA.ORCID 0000-0003-4423-1292
Kelly S O'SullivanHuman Development, Washington State University, Pullman, WA, USA.
Megan GilliganHuman Development and Family Science, University of Missouri, Columbia, MO, USA.
Raven H WeaverHuman Development, Washington State University, Pullman, WA, USA.

Funding

Sibling Relations in the Context of Dementia Parental Care: Implications for Health and Well-Being SupplementK01AG061260 · NIA · UNIVERSITY OF MISSOURI-COLUMBIA · PI GILLIGAN, MEGAN · 2019 to 2023
$673k
NIA NIH HHS K01 AG061260
6 · The paper itself

Abstract

Most dementia caregiver programs focus on a single caregiver, overlooking diverse caregiving networks that include family, friends, and relatives who provide care. We conducted a scoping review of family-centered dementia caregiving programs (ie, interventions with at least 2 caregivers) to (1) describe program components; (2) identify how family members are included; (3) summarize family-level measurements used and the effectiveness of family-centered programs on these outcomes; and (4) explore if and how programs are culturally adapted. We identified 36 articles and 10 programs (individual-family programs, n = 8; multi-family group programs, n = 2). Programs included similar content and effectiveness was reported by the primary caregiver and measured at the individual level. To better support diverse caregiving networks, caregiving programs may benefit from identifying core components of caregiving programs, including best practices in engaging family caregivers, acknowledging varied family structures and the fluidity in caregiving, and measuring strengths and deficits at the family-level.

Indexed as

CaregiversDementiaFamilyHumanscaregivingcore componentsdementiafamilyscoping review

Identifiers

PMID41138238
PMCPMC12572605

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.