ArticleJournal of eating disorders2025
"I could be living a totally different life right now": lived experience and caregiver perspectives on the prevention of eating disorders.
Article in Journal of eating disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed.
- Reflections on the role of Peer Researchers in eating disorders: identifying challenges, best practices, and future directions.Journal of eating disorders · 2026Article
- Ignorance culture and eating disorders: lived experience analysis of alarms being ignored.BJPsych bulletin · 2026Review
- Collective responsibility and ecological thinking in eating disorders: moving beyond individualistic models of illness and recovery.Journal of eating disorders · 2026Article
- Do new labels solve old problems? Conceptual, ethical, and clinical challenges of constructing restrictive eating behaviours as "self-harm".Journal of eating disorders · 2026Article
- A person-centred and data-driven approach to phenotyping anorexia nervosa.Journal of eating disorders · 2026Article
- Conceptualising trauma in eating disorders: a reflexive commentary on the role of neglect, iatrogenic harm, and epistemic injury.Journal of eating disorders · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Eating disorder prevention is widely acknowledged as a priority for the field. However, little space has been given to investigating how people who have endured the impacts of eating disorders view the subject of prevention. This paper is authored by 11 individuals from the UK, all with lived experience of eating disorders and/or caring for someone with an eating disorder. A comprehensive overview of research literature on the prevention of eating disorders is provided using a staged, socio-ecological conceptual framework. This is enriched by an in-depth thematic analysis of personal narratives of illness, treatment, and recovery in relation to the subject of prevention. Five superordinate themes emerged, namely: missed opportunities for early intervention; systemic gaps in treatment; increased impacts of the eating disorder; preventable harm in treatment; and pervasive stigma, ignorance, and misunderstanding. These themes are mapped across stages of prevention and settings, highlighting the costs of the preventable suffering experienced by individuals, families, and communities impacted by eating disorders. The authors suggest key principles for policy-makers and treatment providers that are rooted in the perspectives, needs, and rights of those with lived experience. Recommendations are made for collaborative actions to redress gaps in eating disorder prevention to date, creating more inclusive and responsive approaches to prevention and treatment for the future.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.