Evidence map›Paper›PMID 41136346›Full record

ArticleThe Gerontologist2025

Quality-of-life factors at home and in health care settings for people living with dementia.

Nathan A Boucher, Justine Seidenfeld, Kevin C McKenna, Alli Bosquet, Sahar Shibeika, Judith S Vick, James R Burke, Brenda L Plassman, Cassandra M Dictus, Megan Shepherd-Banigan and 4 more

Erratum issuedAbstract read
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In one paragraph

Article in The Gerontologist, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

14 authors.

Nathan A BoucherDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.ORCID 0000-0002-5732-1927
Justine SeidenfeldCenter of Innovation to Accelerate Discovery and Practice Transformation (ADAPT), Durham Veterans Affairs Health Care System, Durham, North Carolina, United States.ORCID 0000-0001-6912-7315
Kevin C McKennaDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.
Alli BosquetDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.
Sahar ShibeikaDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.
Judith S VickDepartment of Medicine, School of Medicine, Yale University, New Haven, Connecticut, United States.
James R BurkeDepartment of Neurology, School of Medicine, Duke University, Durham, North Carolina, United States.
Brenda L PlassmanDepartments of Psychiatry and Behavioral Sciences and Neurology, School of Medicine, Duke University, Durham, North Carolina, United States.
Cassandra M DictusCenter of Innovation to Accelerate Discovery and Practice Transformation (ADAPT), Durham Veterans Affairs Health Care System, Durham, North Carolina, United States.ORCID 0000-0002-1776-773X
Megan Shepherd-BaniganDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.
Brystana G KaufmanDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.
Valerie A SmithDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.ORCID 0000-0001-5170-9819
S Nicole HastingsDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.
Courtney H Van HoutvenDepartment of Population Health Sciences, School of Medicine, Duke University, Durham, North Carolina, United States.ORCID 0000-0002-0783-1611

Funding

Dementia and Value of Home TimeRF1AG072364 · NIA · DUKE UNIVERSITY · PI VAN HOUTVEN, COURTNEY HAROLD · 2021 to 2024
$2.5M
Dementia and Value of Home TimeR01AG072364 · NIA · DUKE UNIVERSITY · PI Courtney Harold Van Houtven · 2025 to 2026
$2.0M
NIA NIH HHS 1RF1AG072364-01NIA NIH HHS R01 AG072364NIA NIH HHS RF1 AG072364
6 · The paper itself

Abstract

BACKGROUND AND

objectivesPerson-centered "home time" measures track time spent in health care versus home using claims data. These measures can indicate patient preferences, quality of care, or quality of life. However, for people living with dementia, these measures lack input from them and their care partners about the impact of different settings. This study explored quality of life factors for them at home and in health care settings. RESEARCH DESIGN AND

methodsResearchers conducted semistructured interviews with 35 people living with dementia and 46 care partners. Using applied thematic analysis, they developed a content codebook, verified content using NVivo, and categorized themes using Miro.

resultsHome time enhanced quality of life through relationships, familiarity, and purpose but required extra support. Health care settings had mixed effects: Benefits included improved health and burden relief, while drawbacks involved care concerns and loss of independence. DISCUSSION AND IMPLICATIONS: Findings highlight key considerations for developing a "home time" measure reflecting priorities for people living with dementia.

Indexed as

CaregiversDementiaHome Care ServicesQuality of LifeAgedAged, 80 and overFemaleHumansInterviews as TopicMaleMiddle AgedPatient PreferenceQualitative ResearchCare deliveryCaregivingCognitive impairment

Identifiers

PMID41136346
PMCPMC12552107

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.