Evidence map›Paper›PMID 41134754›Full record

ArticlePloS one2025

Expert organisations with "challenging" and "complex" service users: Representation in English and Welsh autism charity reports and accounts.

Helen Abnett, Kathryn Williams, Willow Holloway, Aimee Grant

Abstract read
In one paragraph

Article in PloS one, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Helen AbnettSchool of Social Policy and Society, University of Birmingham, United Kingdom. Current affiliation: Centre for Research in Public Health and Community Care (CRIPACC), School of Health, Medicine and Life Sciences, University of Hertfordshire, United Kingdom.ORCID https://orcid.org/0000-0003-4299-080X
Kathryn WilliamsSchool of Social Sciences, Cardiff University, United Kingdom.ORCID https://orcid.org/0000-0001-7274-3493
Willow HollowayAutistic U.K. CIC, Llandudno, Wales, United Kingdom.
Aimee GrantSchool of Health and Social Care, Swansea University, United Kingdom.ORCID https://orcid.org/0000-0001-7205-5869

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The language and imagery used in Autism charities' communications influences societal understanding of, and attitudes towards, Autistic people. This, in turn, shapes perceptions of whether and how the disabling barriers in society experienced by Autistic people can and should be addressed. Yet, to date, there has been minimal exploration of this discourse employed by Autism charities. We, an Autistic-majority team of researchers, used critical reflexive thematic analysis to examine the language and imagery used in the Trustees' Annual Reports and Accounts of 11 large English and Welsh Autism charities. Representation within these reports emphasises adversities associated with Autism, and the language chosen to portray Autistic people largely describes Autism as an impairment. In contrast, charities represent themselves as the solution to the 'problem' of Autistic people, and thus deserving of increased resources and funding. Government is largely depicted as ineffective and deficient. We argue that these Autism charities are thereby upholding - rather than challenging - the disabling barriers in society experienced by Autistic people. For Autistic charities to better represent Autistic people and improve wider societal understanding of Autism, there is a need for more positive portrayals that challenge the 'charity saviour' trope in charity communications.

Indexed as

Autistic DisorderCharitiesEnglandHumans

Identifiers

PMID41134754
PMCPMC12551846

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.