ArticleEpilepsia2026
A global perspective on transitioning from pediatric to adult care in epilepsy.
Article in Epilepsia, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
3 citing papers in PubMed.
- Transition From Child to Adult Care in Paediatric Neurological Disorders in Europe-A Joint EAN-EPNS Survey of Current Practices for Healthcare Providers.European journal of neurology · 2026Article
- Growing pains: adult subspecialist perspectives on improving transition from paediatric to adult care for youth with complex health conditions.BMJ open quality · 2026Article
- Article
Corrections and comments
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Authors and funding
24 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTransition planning in epilepsy is crucial to ensure continuity of care, particularly for adolescents with complex needs, yet global practices remain undefined. The International League Against Epilepsy Transition Task Force (ILAE TTF) aimed to evaluate worldwide practices, barriers, and provider perspectives on transitioning patients with epilepsy from pediatric to adult healthcare systems.
methodsA cross-sectional, web-based survey was conducted between August 2021 and March 2024. The 50-item survey, adapted from validated instruments, was distributed in eight languages through ILAE chapters to health care professionals involved in the care of individuals with epilepsy. This study sought to evaluate the availability of structured transition programs, educational and systemic barriers, and recommendations to improve transition. Descriptive statistics, Fisher's exact tests, and multivariate logistic regression analyses were used to compare responses between adult and child neurologists, as well as by country region and income level.
resultsA total of 316 neurologists from 58 countries completed the survey. Only 9% reported structured transition programs both locally and nationally, whereas 59% reported none or were unaware of any. Respondents from the Global South were significantly less likely to report transition programs (odds ratio [OR], 0.16; 95% confidence interval [CI], 0.94-0.27; p < .001). Half of the participants believed pediatric teams should continue follow-up after transfer. Major barriers included a lack of financial support, limited transition-specific training, and adult neurologists unfamiliar with childhood-onset epilepsies. Reported patient-educational gaps included vocational guidance (73%), reproductive health (60%), and driving (57%). Recommendations to improve transition included integrating transition training into neurology curricula (87%), creating dedicated clinical structures and care networks (87%), establishing joint consultations between pediatric and adult neurologists (86%), and implementing national guidelines (89%). SIGNIFICANCE: This study demonstrates that epilepsy transition practices remain fragmented and underdeveloped worldwide, especially in low-resource settings. Enhanced training, improved clinical infrastructure, and better policy coordination are crucial to facilitate effective and equitable transitions.
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Registered trials
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