Evidence map›Paper›PMID 41126127›Full record

ArticleBMC psychiatry2025

Caregiver psychiatric symptoms, assessment delay, and access to supports for children with neurodevelopmental conditions.

Kelsie A Boulton, Antoinette Hodge, Natalie Ong, Christel M Middeldorp, David Coghill, Natalie Silove, Adam J Guastella

Abstract read
In one paragraph

Article in BMC psychiatry, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
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0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Kelsie A BoultonClinic for Autism and Neurodevelopment (CAN) research, Brain and Mind Centre, Children's Hospital Westmead Clinical School, Faculty of Medicine and Health, University of Sydney, Sydney, Australia. kelsie.boulton@sydney.edu.au.
Antoinette HodgeChild Development Unit, The Children's Hospital at Westmead, Westmead, NSW, 2145, Australia.
Natalie OngChild Development Unit, The Children's Hospital at Westmead, Westmead, NSW, 2145, Australia.
Christel M MiddeldorpDepartment of child and adolescent psychiatry and psychology, Amsterdam UMC, Amsterdam Reproduction and Development research Institute, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
David CoghillThe University of Melbourne, Melbourne, Australia.
Natalie SiloveChild Development Unit, The Children's Hospital at Westmead, Westmead, NSW, 2145, Australia.
Adam J GuastellaClinic for Autism and Neurodevelopment (CAN) research, Brain and Mind Centre, Children's Hospital Westmead Clinical School, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere are significant barriers to accessing assessments and supports for children with neurodevelopmental conditions and their families. This study examined the influence of elevated psychiatric symptoms in caregivers on delays to assessment and access to supports for their children and themselves.

methodsThis cross-sectional study from the Sydney Child Neurodevelopment Research Registry collected information about caregiver psychiatric symptoms, and access and barriers to supports. Participants were 187 children and their caregivers who presented to a tertiary diagnostic and assessment service.

resultsChildren of caregivers with elevated psychiatric symptoms had a one-year delay in accessing developmental assessment, compared to children of caregivers without elevated psychiatric symptoms. This was despite there being no significant difference in the age at which caregivers first detected a developmental delay in children. Caregivers with elevated psychiatric symptoms also reported greater perceived support needs for themselves and their child, and increased barriers to accessing these supports.

conclusionsThis study highlights a complex inter-relationship between caregiver mental health and access to supports and intervention services for children with neurodevelopmental conditions. Caregivers with elevated psychiatric symptoms report greater service needs for themselves and their child, as well as reporting more barriers when accessing these services. Results suggest elevated caregiver psychiatric symptoms provide a useful indicator for enhanced support pathways and specialised care.

Indexed as

CaregiversHealth Services AccessibilityMental DisordersNeurodevelopmental DisordersAdolescentChildChild, PreschoolCross-Sectional StudiesDevelopmental DisabilitiesFemaleHumansMaleBarriersDevelopmental assessmentsHealthcareParental mental health

Identifiers

PMID41126127
PMCPMC12548143

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.