ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2025
The National Alzheimer's Coordinating Center (NACC) 1999-2025: Personal history and recollections.
Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 2 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
2 citing papers in PubMed.
- Waking up to the truth: Associations between sleep disorders and multidomain functional outcomes in Alzheimer's disease.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- The National Alzheimer's Coordinating Center (NACC) 1999-2025: Personal history and recollections.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
Corrections and comments
- Erratum issued
Authors and funding
1 author.
Funding
Abstract
introductionThe National Alzheimer's Coordinating Center (NACC), founded in 1999 by the author, has many collaborators and contributors. NACC worked with Alzheimer's Disease Research Centers (ADRCs) to establish and maintain standardized, rigorous data collection, primarily through the Uniform Data Set. Clinical expertise was provided by the National Institute on Aging (NIA)/ADRC Clinical Task Force. Collaboration and leadership of many individuals was necessary for the content and context validity for NACC and NACC data.
methodsThis paper includes personal insights, recollections, and milestones in a casual narrative conversation. It does not chronicle exact dates of experiences nor achievements. The author mentions just a few of the many great people and forces that shaped and sustained NACC.
resultsThe NIA, ADRCs, and NACC are a network of collaboration, communication, and worldwide data sharing. It will have lasting impact on the Alzheimer's disease and related dementias field. DISCUSSION: NACC's ≈ 1500 publications are available on PubMed by searching U01 AG016976 and U24 AG072122. HIGHLIGHTS: The first stages in forming National Alzheimer's Coordinating Center (NACC) data collection were formation of the Minimum Data Set and the neuropathology data set. The challenges in development of the Uniform Data Set (UDS) as the basic data collection mechanism for all the National Institute on Aging Alzheimer's Disease Research Centers (ADRCs) were substantial and involved all ADRCs. The critical role of the Clinical Task Force was to establish not only UDS content but to cement the overall importance of the UDS as the "cornerstone" of NACC and the ADRC program. Since 2021 there have been new informatics innovations, novel data streams and the development of the Data Front Door.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.