Evidence map›Paper›PMID 41122040›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2025

Development of an Essential Information Set for Supporting Life With Bipolar Disorder: A Modified Delphi Study With Patients, Families and Healthcare Professionals.

Rieko Nagata, Takashi Amagasa, Takashi Okura, Kayoko Ichikawa, Yoshitaka Nishikawa, Mayumi Toyama, Hiroshi Okada, Yoshimitsu Takahashi, Yu Sakagami, Eiji Suzuki and 2 more

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Development of an Essential Information Set for Supporting Life With Bipolar Disorder: A Modified Delphi Study With Patients, Families and Healthcare Professionals.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Rieko NagataDepartment of Health Informatics, School of Public Health, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0009-0007-5165-4441
Takashi AmagasaDepartment of Health Informatics, School of Public Health, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0009-0004-0804-0928
Takashi OkuraDepartment of Health and Welfare, Graduate School of Health and Welfare Science, Okayama Prefectural University, Soja, Japan.ORCID 0000-0001-8326-4316
Kayoko IchikawaDepartment of Health Informatics, School of Public Health, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0009-0006-1599-3123
Yoshitaka NishikawaDepartment of Health Informatics, School of Public Health, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0000-0003-3313-1990
Mayumi ToyamaDepartment of Health Informatics, School of Public Health, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0000-0001-8614-4870
Hiroshi OkadaDepartment of Preventive Medicine, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0000-0002-9950-0245
Yoshimitsu TakahashiDepartment of Health Informatics, School of Public Health, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0000-0003-4073-9945
Yu SakagamiOccupational Welfare Division, Agency for Health, Safety and Environment, Kyoto University, Kyoto, Japan.
Eiji SuzukiDepartment of Psychiatry, Tohoku Medical and Pharmaceutical University, Sendai, Japan.ORCID 0009-0001-1190-4844
Norio OzakiPathophysiology of Mental Disorders, Nagoya University Graduate School of Medicine, Nagoya, Japan.ORCID 0000-0002-7360-4898
Takeo NakayamaDepartment of Health Informatics, School of Public Health, Kyoto University Graduate School of Medicine, Kyoto, Japan.ORCID 0000-0002-7918-6252

Funding

The authors received no specific funding for this study.
6 · The paper itself

Abstract

objectiveBipolar disorder is a chronic condition characterised by alternating periods of depression and heightened mood, leading to considerable disability and frequent relapses, often resulting in difficulties in maintaining a stable social life. This study aimed to develop a set of essential information through a structured consensus process with patients, family members and healthcare professionals, to support patients with bipolar disorder to actively participate in their treatment and maintain a social life.

methodsA modified Delphi method was used to develop a consensus among patients, family members and healthcare professionals. The following steps were involved: a review of existing relevant literature, individual rating by experts, and multiple expert panel meetings. We conducted two rounds of individual ratings and face-to-face panel meetings following the literature review.

resultsThe literature review identified 126 candidate items. The expert panel comprised 11 members, including patients, family members and healthcare professionals. Through the consensus process, 23 items were selected to form the essential information set.

conclusionThe developed 23-item essential information set provides the minimum necessary information for patients, family members and healthcare professionals to support living well with bipolar disorder. This set can serve as a basis for psychoeducation. This study provides a foundation for future research to explore its effectiveness in clinical settings. PATIENT OR PUBLIC CONTRIBUTION: Patients and family members participated in the expert panel, where they rated candidate items, shared their lived experiences and provided feedback on the wording of each item in the information set during the panel meetings.

Indexed as

Bipolar DisorderFamilyHealth PersonnelAdultConsensusDelphi TechniqueFemaleHumansMaleMiddle Agedattitudesbipolar disorderconsensus developmentDelphi techniquehealth knowledgepatient participationpracticepsychoeducation

Identifiers

PMID41122040
PMCPMC12541233

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.