Evidence map›Paper›PMID 41120192›Full record

Trial reportLupus science & medicine2025

Does social support reduce bodily pain among African American women with SLE? Findings from a randomised controlled trial.

Jerik Leung, Everette P Keller, Paul Nietert, Tomika Caldwell, Clara L Dismuke-Greer, Hetlena Johnson, Edith Williams

Registry-linked trialAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Lupus science & medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03734055 (Peer Approaches to Lupus Self-management), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03734055 naactive not recruitingnot on this map

Peer Approaches to Lupus Self-management

TypeinterventionalSponsorMedical University of South CarolinaRan2018 to 2026Enrolled314ConditionsSystemic Lupus Erythematosus, Quality of Life, Behavior, HealthArmsPeer Mentoring, Social Support Group
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jerik LeungBehavioral, Social, and Health Education Sciences, Emory University, Atlanta, Georgia, USA jerik.leung@emory.edu.ORCID 0000-0001-5344-3102
Everette P KellerPublic Health Sciences, Medical University of South Carolina, Charleston, South Carolina, USA.
Paul NietertPublic Health Sciences, Medical University of South Carolina, Charleston, South Carolina, USA.
Tomika CaldwellPublic Health Sciences, Medical University of South Carolina, Charleston, South Carolina, USA.
Clara L Dismuke-GreerHealth Economic Resource Center, VA Palo Alto Health Care System, Palo Alto, California, USA.
Hetlena JohnsonLupus Community Advocate/Researcher, Charleston, South Carolina, USA.
Edith WilliamsPublic Health Sciences, University of Rochester Medical Center, Rochester, New York, USA.

Funding

Resource CoreP30AR072582 · NIAMS · MEDICAL UNIVERSITY OF SOUTH CAROLINA · PI JAMES C OATES · 2017 to 2026
$8.5M
Peer Approaches to Lupus Self-Management (PALS) - Diversity SupplementR01NR017892 · NINR · UNIVERSITY OF ROCHESTER · PI WILLIAMS, EDITH MARIE · 2018 to 2022
$2.5M
Superwoman Coping: A multi-level analysis of self-management behaviors and cardiovascular disease risk among Black women with systemic lupus erythematosusF31AR084335 · NIAMS · EMORY UNIVERSITY · PI Jerik Leung · 2024 to 2026
$149k
NIAMS NIH HHS F31 AR084335NIAMS NIH HHS P30 AR072582NINR NIH HHS R01 NR017892
6 · The paper itself

Abstract

objectivePeer mentoring has been shown to be an effective intervention for chronic conditions with evidence to suggest that it might improve health-related bodily pain among African American women living with systemic lupus erythematosus (SLE). However, there is a lack of evidence to describe the intervention impact when adjusting for self-management of SLE. The present work aims to determine whether greater patient activation is associated with greater reductions in pain overall and within intervention groups.

methodsData were used from the Peer Approaches to Lupus Self-Management study, a randomised controlled trial designed to determine the efficacy of peer mentorship in African American women with SLE. A total of 274 participants were randomised to an intervention (mentorship) or control (non-mentorship) arms. Data were collected on self-reported Lupus Quality of Life questionnaire for bodily pain and Patient Activation Measure (PAM). Linear mixed models and multivariable linear mixed models were fit to assess the intervention and impact of PAM on bodily pain over time.

resultsIncreased patient activation was significantly associated with greater reductions in bodily pain (b=-0.13, p=0.019); however, there was no significant difference in intervention group over the study period between the intervention and control groups

conclusionPatient self-management can have a significant effect on bodily pain for SLE patients. Future work aims to consider strategies which address patient activation as a mechanism for reducing pain and improving quality of life. TRIAL REGISTRATION NUMBER: NCT03734055.

Indexed as

Black or African AmericanLupus Erythematosus, SystemicPainSelf-ManagementSocial SupportAdultFemaleHumansMentoringMiddle AgedPeer GroupQuality of LifeSurveys and QuestionnairesWhiteHealth-Related Quality Of LifeLupus Erythematosus, SystemicPainPsychologyQuality of LIfe

Identifiers

PMID41120192
PMCPMC12542739

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.