Evidence map›Paper›PMID 41118125›Full record

ArticleJournal of advanced nursing2026

Interpretative Phenomenological Study Exploring Why People With Kidney Failure Say 'No' to a Kidney Transplant.

Emma Jones, Leah McLaughlin, Kate Shakespeare, Jane Noyes

Abstract read
In one paragraph

Article in Journal of advanced nursing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Emma JonesCardiff and Vale University Health Board, Cardiff, UK.ORCID https://orcid.org/0000-0001-5784-822X
Leah McLaughlinBangor University, School of Health Sciences, Bangor, UK.ORCID https://orcid.org/0000-0003-0185-6639
Kate ShakespeareCadwaladr University Health Board, Renal Unit Glan Clwyd Hospital, Rhyl, UK.
Jane NoyesBangor University, School of Health Sciences, Bangor, UK.ORCID https://orcid.org/0000-0003-4238-5984

Funding

KESS 2
6 · The paper itself

Abstract

aimTo develop an in-depth understanding of peoples' perceptions and experiences of decision-making and reasons why they declined the opportunity of a kidney transplant.

designThe Theory of Planned Behaviour informed the qualitative interpretative phenomenological analysis.

methodsSemi-structured interviews were conducted between August 2022 and June 2023 with thirty adults in the United Kingdom who had declined a kidney transplant. Interviews were digitally recorded and transcribed verbatim.

findingsDeciding against having a kidney transplant for the majority of people was a concrete decision. Multiple reasons transcended four cross cutting themes: The impact of negative past experiences on kidney transplant decision-making, Negative attitudes, beliefs, and perceptions towards kidney transplantation, Preferred not to have a kidney transplant, and Perceived benefits of deciding against a kidney transplant. Earlier negative experiences culminated in mistrust. People feared kidney transplant failure and were not willing to take the risk of being worse off. Some people perceived they were too old and preferred younger people to be offered available kidneys. COVID-19 negatively impacted some people's decisions.

conclusionDespite people's decisions being perceived as at odds with healthcare professionals and current policies to increase transplantation rates, overall, the decision not to have a kidney transplant appeared carefully thought through. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: People's choices were informed, multifaceted and shaped by personal experiences, perceived risks and individual values. Recognising these factors is essential in improving patient-centred care and shared decision-making. Nurse-led patient education needs to carefully balance promoting kidney transplant as the preferred kidney replacement treatment option. IMPACT: The findings contribute new understanding and theory as to why people living with kidney failure decide against having a kidney transplant. Perceived benefits of not having a transplant outweighed potential advantages, and patients exercised their legal right to make an informed decision. REPORTING

methodCOREQ and SRQR. PATIENT OR PUBLIC CONTRIBUTION: People living with kidney disease were involved from the outset; their contributions included prioritising the research question, shaping the study design, commenting on participant documents, analysing, interpreting findings and dissemination.

Indexed as

Decision MakingKidney TransplantationRenal InsufficiencyAdultAgedCOVID-19FemaleHumansMaleMiddle AgedQualitative ResearchUnited Kingdomdeclineinterpretive phenomenological inquirykidney diseasekidney transplantnursingpatient experiencequalitativeshared decision‐making

Identifiers

PMID41118125
PMCPMC13176721

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.