Evidence map›Paper›PMID 41110019›Full record

ReviewThe patient2026

Strategies to Translate PROMs to Linguistically Diverse and Lesser-Spoken Languages: Lessons from Wales.

Robert I Palmer, Hawys Waddington, Kathleen Withers

Abstract readReview
In one paragraph

Review in The patient, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Robert I PalmerCentre for Healthcare Evaluation, Device Assessment and Research (CEDAR), Cardiff and Vale University Heath Board, Cardiff, UK.ORCID 0000-0003-0570-515X
Hawys WaddingtonCentre for Healthcare Evaluation, Device Assessment and Research (CEDAR), Cardiff and Vale University Heath Board, Cardiff, UK. Hawys.Waddington@wales.nhs.uk.ORCID 0009-0001-7315-0849
Kathleen WithersCentre for Healthcare Evaluation, Device Assessment and Research (CEDAR), Cardiff and Vale University Heath Board, Cardiff, UK.ORCID 0000-0001-9514-2025

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patient-reported outcome measures (PROMs) are widely implemented in Wales to achieve Value-Based Healthcare (VBHC). All patient-facing information in Wales must be available bilingually; therefore, Welsh-language PROM translation is necessary. Conceptually equivalent and patient-friendly translations of PROMs are essential to ensure that the data they collect are equivalent to that collected via their corresponding original language versions. As a result, the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) have developed best practice principles for PROM translations. This article reflects on a body of work undertaken over 8 years between 2016 and 2024 to translate a series of PROMs from English to Welsh by attempting to follow these principles. While effective in most areas, they do not provide guidance on reaching an appropriate register in languages with more than one register, dealing with multiple dialects, or how to recruit enough participants for cognitive debriefing when there are limited numbers of native speakers. Lessons have been learned while trying to manage these challenges in Wales, and recommendations for future practice are provided.

Indexed as

LanguageMultilingualismPatient Reported Outcome MeasuresTranslatingHumansWales

Identifiers

PMID41110019
PMCPMC12935847

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.