ArticleJournal of the American Geriatrics Society2026
When Missing Out Matters: Associations Between Social Activity Restriction and Caregiver Burden.
Article in Journal of the American Geriatrics Society, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Family caregivers' experiences in dementia villages: a model for sustainable and meaningful care.Frontiers in dementia · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundSocial engagement is crucial for well-being, yet caregivers often face restrictions due to care responsibilities. The caregiver-specific consequences of these restrictions are underexplored.
methodsWe used cross-sectional data from the National Study of Caregiving (2021), a nationally representative study of 1619 unpaid caregivers of adults aged 65 years and older. Caregivers reported if care responsibilities kept them from participating in four social activities (visiting friends/family, attending religious services, going out for enjoyment, and attending group activities). Caregiver burden (emotional, physical, and/or financial) was self-reported. "Any" burden was defined as reporting at least one of the three types of burden. We performed survey-weighted, multivariable logistic regression to determine the adjusted probability of caregiver burden based on social activity participation.
resultsCaregivers were on average 62.5 (SD 22) years old, 65% female, 53% children of the care recipient, and 73% White. 43% reported at least one form of caregiving burden: 35% emotional, 17% physical, and 9% financial. Caregivers had higher adjusted probabilities of "any" caregiving burden (p < 0.001) if they were kept from going out (88% vs. 62%), visiting family/friends (86% vs. 55%), or engaging in group activities (88% vs. 61%). For missed religious activities, caregivers primarily reported higher burden if they rated the missed activities as "important" versus "unimportant" (Any burden: 85% vs. 57%; Emotional burden: 74% vs. 45%; Physical burden: 65% vs. 29%, p < 0.05). Importance was not significant for other activities. There was a step-wise association between the number of missed activities and any reported burden (0 activities missed: 54%, 1 activity: 77%, 2+ activities: 91%, p < 0.01).
conclusionsRestriction from social activities was associated with higher caregiver burden, with the impact of missing religious activities influenced by its importance to the caregiver. These findings emphasize the need for tailored interventions to help caregivers maintain social engagement despite care responsibilities.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.