ReviewResearch involvement and engagement2025
A systematic review of co-production approaches that involve family members, loved ones, or carers in the development of mental health or substance use resources/interventions.
Review in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe prevalence of mental health and substance use disorders is rising globally, significantly affecting not only individuals but also their families, loved ones, and carers. These affected loved ones are often overlooked despite providing unique insights that can contribute to the development of resources/interventions for these disorders. Co-production, a participatory approach in which public members are involved as equal partners in research, offers a valuable framework for including these individuals. However, involving affected loved ones presents specific challenges due to their emotional and vulnerable position.
methodsThis systematic review aimed to address three questions: (1) What co-production procedures are used with affected loved ones in developing mental health and substance use resources/interventions? (2) How do researchers and stakeholders assess co-production experiences? (3) What components of co-production facilitate the involvement of the affected loved ones of those with mental health and substance use disorders or concerns? Eligible studies included at least one affected loved one in the co-production development of a mental health or substance use resource/intervention, provided a description of the co-production approach, and were in English. All dates were included in searches across seven databases using the Mixed Methods Appraisal tool and an adapted co-production checklist.
resultsContent and thematic analyses were conducted, revealing three key themes for the meaningful involvement of affected loved ones in co-production: creating a safe and trusting environment, facilitating accessibility and open dialogue, and integrating diverse perspectives. Additionally, the review found variability in the use of co-production terminology. DISCUSSION: These findings underscore the importance of prioritising inclusive, sensitive co-production approaches to ensure that the voices of those supporting individuals with mental health and substance use disorders are heard and valued. Future research should aim to clarify these terms and adopt standardised reporting styles to ensure sufficient detail and consistency in reports.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.