Evidence map›Paper›PMID 41100180›Full record

ArticleJMIR research protocols2025

Use of Indigenous-Based Methodologies to Enhance the Understanding of Local Context in Ugandan Communities: Protocol for a Mixed Methods Study.

Sahr Wali, Jeremy I Schwartz, Justice Seidel, Jenipher Kamarembo, Jenifer Atala, Ann R Akiteng, Martha Nabadda, Cinderella N Muhangi, Angela Mashford-Pringle, Heather Ross and 2 more

Abstract read
In one paragraph

Article in JMIR research protocols, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Sahr WaliDalla Lana School of Public Health, Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada.ORCID 0000-0003-1928-531X
Jeremy I SchwartzUganda Initiative for Integrated Management of Non-Communicable Diseases, Kampala, Uganda.ORCID 0000-0003-0139-2600
Justice SeidelNOSM University, Thunder Bay, Canada.ORCID 0009-0001-7098-9964
Jenipher KamaremboUganda Heart Institute, Mulago Hospital, Kampala, Uganda.ORCID 0000-0001-5990-9540
Jenifer AtalaLira Regional Referral Hospital, Lira, Uganda.ORCID 0000-0003-4277-9262
Ann R AkitengUganda Initiative for Integrated Management of Non-Communicable Diseases, Kampala, Uganda.ORCID 0000-0002-1261-6764
Martha NabaddaUganda Initiative for Integrated Management of Non-Communicable Diseases, Kampala, Uganda.ORCID 0009-0000-0354-4810
Cinderella N MuhangiUganda Initiative for Integrated Management of Non-Communicable Diseases, Kampala, Uganda.ORCID 0000-0001-7299-2502
Angela Mashford-PringleWaakebiness-Bryce Institute for Indigenous Health, Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.ORCID 0000-0002-5623-7053
Heather RossTed Rogers Centre for Heart Research, University Health Network, Toronto, ON, Canada.ORCID 0000-0003-4384-3027
Joseph CafazzoCentre for Digital Therapeutics, University Health Network, Toronto, ON, Canada.ORCID 0000-0002-3114-4440
Isaac SsinabulyaUganda Initiative for Integrated Management of Non-Communicable Diseases, Kampala, Uganda.ORCID 0000-0001-6521-7778

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWith many socially disadvantaged populations experiencing a higher level of illness than the general population, health research has begun to recognize the impact of social determinants on health outcomes. Community-based research has increasingly been used to understand the complexities of the local context. However, given the number of interdependent factors influencing individual well-being, no single methodology can explore this level of complexity alone. To put context into perspective, research processes need to shift from the sole use of Western methodologies and, instead, incorporate collaborative methods from nontraditional research. Specifically, Indigenous methodologies have been developed to better understand the complexity of context within multiple worldviews, but current studies have failed to apply these approaches within other cultural settings.

objectiveThis mixed methods study will use Western and Indigenous methodologies to adapt a digital health program for remote communities in Uganda.

methodsUsing the principles of community-based research and user-centered design, a 4-phase mixed methods study will be conducted. The Indigenous method of 2-eyed seeing will be used to promote a reflexive engagement strategy throughout all study phases. Phase 1 will focus on partnership building to codevelop the project priorities and study design. Phase 2 will involve a needs assessment to elicit a context-focused understanding of the local clinic and community environment. Phase 3 will involve a series of system adaptations to co-design the program. Phase 4 will consist of a community-based field study to evaluate the usability and cultural relevance of the adapted program.

resultsThis study was approved by the Makerere University School of Medicine Research and Ethics Committee (Mak-SOMREC-2021-63) and the University Health Network Research Ethics Board (20-6022). This protocol provides a novel strategy leveraging a range of community-based methods to ensure that the contextual significance of each community's challenges is reflected in the design of the Medly Uganda program. Partnership building was initiated in June 2019, and the first stage of data collection in phase 2 began in January 2021. At the time of manuscript submission, phases 1 to 3 have been completed. Phase 4 data analysis is ongoing and expected to be completed in October 2025.

conclusionsIntegrating the community's local knowledge into the design of the Medly Uganda program will lead to the development of meaningful interventions that improve health outcomes. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/75136.

Indexed as

Health Services, IndigenousCommunity-Based Participatory ResearchHumansResearch DesignUgandacommunity-based researchdigital healthheart failureparticipatory researchuser-centered design

Identifiers

PMID41100180
PMCPMC12576299

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.